FD-UK

Charity number: 285399
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £21,563
Total expenditure: £35,698

People

3 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • Other Charitable Purposes
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • People Of A Particular Ethnic Or Racial Origin
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Other Finance
  • Provides Human Resources
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 14 September 1982: Standard registration
  • 22 May 2024: Funds received from 1070222 EASY-ACCESS JEWISH HELPLINK
Organisation type:
Other
Other names:
  • THE DYSAUTONOMIA SOCIETY OF GREAT BRITAIN (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Bryan King Trustee 03 January 2017
None on record
Anthony Landau Trustee 01 December 2016
None on record
Sarah Landau Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £26.70k £21.21k £20.80k £18.10k £21.56k
Total expenditure £25.35k £28.36k £27.21k £28.80k £35.70k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 30 October 2024 On Time
Accounts and TAR 31 December 2023 Not Required
Annual return 31 December 2022 31 October 2023 On Time
Accounts and TAR 31 December 2022 Not Required
Annual return 31 December 2021 30 October 2022 On Time
Accounts and TAR 31 December 2021 Not Required
Annual return 31 December 2020 05 December 2021 35 days late
Accounts and TAR 31 December 2020 Not Required
Annual return 31 December 2019 21 August 2021 294 days late
Accounts and TAR 31 December 2019 21 August 2021 294 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 11/08/1982 AS AMENDED ON 07/02/2012

Charitable objects

THE RELIEF OF PERSONS SUFFERING FROM ANY MENTAL OR PHYSICAL DISORDER IN PARTICULAR DYSAUTONOMIA. THE PROMOTION OF THE STUDY OF AND RESEARCH INTO THE CAUSES TREATMENT ELEVATION AND CURE OF SUCH DISORDERS IN PARTICULAR DYSAUTONOMIA PROVIDED THAT THE USEFUL RESULTS OF SUCH RESEARCH OF STUDIES ARE DISSEMINATED AMONG THE PUBLIC AT LARGE.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
15 SOMALI ROAD
LONDON
NW2 3RN
Phone:
02074350243
Email:
sarah.landau15@gmail.com
Website:

fd-uk.org