THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST

Charity number: 311877
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Established in 1897 the National Centre for Young People with Epilepsy is a national charity that is the UK's major provider of services to children and young people with epilepsy and associated learning, emotional and behavioural difficulties. The Trading Name, Young Epilepsy, launched in Nov 2011, reflects our ambition to reach as many of the 112,700 young people with epilepsy, as possible.

Income and expenditure

Data for financial year ending 31 July 2024

Total income:
£25,101,000

Text alternative for this canvas graphic is in the data table below.
Donations and legacies £1.89m
Charitable activities £22.02m
Other trading activities £379.00k
Investments £0
Other £816.00k

Total expenditure:
£25,416,000

Text alternative for this canvas graphic is in the data table below.
Raising funds £697.00k
Charitable activities £24.72m
Other £0

£0 investments gains (losses)

Total income includes £19,652,391 from 36 government contract(s) and £277,000 from 13 government grant(s)

Charitable expenditure

Charitable expenditure

Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.

In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.

Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.

By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.

Text alternative for this canvas graphic is in the data table below.
Raising funds and other expenditure £697.00k
Charitable expenditure £24.72m

People

558 Employee(s)

1 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

Number of employees
£60k to £70k 10
£70k to £80k 2
£90k to £100k 2
£100k to £110k 2
£110k to £120k 1

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 24 July 1963: Standard registration
Organisation type:
Other
Other names:
  • ST PIERS (Working name)
  • YOUNG EPILEPSY (Working name)
  • ST PIERS LINGFIELD (Previous name)
  • ST PIERS LINGFIELD CHARITY (Previous name)
  • THE LINGFIELD HOSPITAL SCHOOL (Previous name)
  • THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
  • Care Quality Commission
  • Ofsted (Office For Standards In Education)
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

1 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY Trustee 14 May 2012
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/07/2020 31/07/2021 31/07/2022 31/07/2023 31/07/2024
Total gross income £25.31m £24.52m £22.82m £22.19m £25.10m
Total expenditure £25.80m £24.79m £23.37m £24.00m £25.42m
Income from government contracts £23.29m £22.43m £20.60m £20.36m £19.65m
Income from government grants N/A £228.00k £194.00k £224.00k £277.00k
Income - Donations and legacies £1.19m £1.41m £1.76m £1.35m £1.89m
Income - Other trading activities £0 £682.00k £458.00k £0 £379.00k
Income - Charitable activities £23.29m £22.43m £20.60m £20.36m £22.02m
Income - Endowments £0 £0 £0 £0 £0
Income - Investment £31.00k £3.00k £0 £0 £0
Income - Other £801.00k £0 £0 £484.00k £816.00k
Income - Legacies £22.00k £117.00k £232.00k £33.00k £42.00k
Expenditure - Charitable activities £25.37m £24.39m £22.98m £23.45m £24.72m
Expenditure - Raising funds £431.00k £401.00k £393.00k £546.00k £697.00k
Expenditure - Governance £92.00k £0 £0 £138.59k £194.85k
Expenditure - Grants institution £0 £0 £0 £0 £0
Expenditure - Investment management £0 £0 £0 £0 £0
Expenditure - Other £0 £0 £0 £0 £0

Assets and liabilities

Definitions for assets and liabilities
Own use assets

These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.

Long term Investments

Investments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.

Other assets

These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.

Defined benefit pension scheme asset or liability

This is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.

Total liabilities

These are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.

" role="img"> Text alternative for this canvas graphic is in the data table below.
Asset / Liability 31/07/2020 31/07/2021 31/07/2022 31/07/2023 31/07/2024
Own use assets £21.63m £21.46m £22.05m £21.24m £21.56m
Long-term investments £1.00k £0 £0 £0 £0
Other assets £7.05m £6.74m £4.94m £5.65m £3.68m
Defined benefit pension scheme asset or liability -£9.63m -£8.89m -£6.51m -£4.63m -£4.71m
Total liabilities £2.00m £2.09m £1.86m £3.81m £2.88m

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 July 2024 27 March 2025 On time
Accounts and TAR 31 July 2024 27 March 2025 On time Download Open in new window
Annual return 31 July 2023 03 May 2024 On time
Accounts and TAR 31 July 2023 03 May 2024 On time Download Open in new window
Annual return 31 July 2022 31 January 2023 On time
Accounts and TAR 31 July 2022 31 January 2023 On time Download Open in new window
Annual return 31 July 2021 22 February 2022 On time
Accounts and TAR 31 July 2021 22 February 2022 On time Download Open in new window
Annual return 31 July 2020 07 January 2021 On time
Accounts and TAR 31 July 2020 07 January 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

SCHEME OF THE CHARITY COMMISSIONERS DATED 31 OCTOBER 2002 AS AMENDED ON 22 JANUARY 2004 AND 21 OCTOBER 2004 AS AMENDED BY SCHEME DATED 21 JAN 2025

Charitable objects

THE OBJECTS OF THE CHARITY ARE, FOR THE PUBLIC BENEFIT: (1) THE ADVANCEMENT OF EDUCATION BY THE PROVISION OF A SPECIAL SCHOOL WITHIN THE MEANING OF THE EDUCATION ACTS AND A COLLEGE FOR FURTHER EDUCATION TO FURTHER THE EDUCATION OF CHILDREN AND YOUNG PEOPLE WITH SPECIAL EDUCATIONAL NEEDS SUPPORTING THEM TO BETTER REACH THEIR POTENTIAL; (2) TO ADVANCE THE EDUCATION OF THE WIDER PUBLIC AND PROFESSIONALS REGARDING EPILEPSY, IN PARTICULAR HEALTH AND EDUCATION BODIES AND AGENCIES, ABOUT THE PHYSICAL, SOCIAL, EMOTIONAL AND MENTAL HEALTH EFFECTS EXPERIENCED BY CHILDREN AND YOUNG PEOPLE LIVING WITH EPILEPSY, WITH A FOCUS ON THE CAUSES, ADVANCING BETTER TREATMENT AND THE ALLEVIATION OF IMPACT THEREOF THROUGH THE PROMOTION OF RESEARCH, ADVOCACY, AWARENESS RAISING AND THE PROVISION OF INFORMATION AND TRAINING; AND (3) THE RELIEF OF NEED OF CHILDREN, YOUNG PEOPLE, THEIR CAREGIVERS AND FAMILIES WHO ARE EXPERIENCING OR ARE AFFECTED BY EPILEPSY AND ASSOCIATED NEUROLOGICAL CONDITIONS THROUGH THE DEVELOPMENT AND DELIVERY OF EDUCATION, CARE AND SUPPORT, INCLUDING THROUGH BRINGING YOUNG PEOPLE TOGETHER TO CREATE A COMMUNITY OF SUPPORT.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED. IN PRACTICE LINGFIELD.

Contact information

Address:
Young Epilepsy
St. Piers Lane
LINGFIELD
RH7 6PW
Phone:
01342 832243
Email:
rnorman@youngepilepsy.org.uk
Website:

www.youngepilepsy.org.uk Open in new window