MYOSITIS UK

Charity number: 327791
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To provide up to date information on all forms of Myositis To help give those affected a better understanding of their illness To relieve the isolation felt by the individual when a rare illness is diagnosed To guide those with the condition in the right direction of treatment To raise awareness of the conditions To raise funds to promote and fund research

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £262,343
Total expenditure: £230,706

People

3 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 26 April 1988: Standard registration
Organisation type:
Other
Other names:
  • MYOSITIS SUPPORT GROUP (Previous name)
  • THE DERMATOMYOSITIS AND POLYMYOSITIS SUPPORT GROUP (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
LESLIE CHARLES OAKLEY MBE Chair
None on record
PAULA RACHAEL JORDAN Trustee
None on record
JOANNE DEBORAH GOODE Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £68.50k £347.24k £85.18k £115.65k £262.34k
Total expenditure £63.76k £152.57k £18.76k £68.81k £230.71k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 31 January 2025 On time
Accounts and TAR 31 March 2024 31 January 2025 On time
Annual return 31 March 2023 30 January 2024 On time
Accounts and TAR 31 March 2023 30 January 2024 On time
Annual return 31 March 2022 27 July 2023 177 days late
Accounts and TAR 31 March 2022 27 July 2023 177 days late
Annual return 31 March 2021 08 July 2022 158 days late
Accounts and TAR 31 March 2021 08 July 2022 158 days late
Annual return 31 March 2020 31 January 2021 On time
Accounts and TAR 31 March 2020 31 January 2021 On time
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 13/04/1988 AS AMENDED ON 21/07/2013

Charitable objects

TO PROMOTE THE RELIEF OF PERSONS SUFFERING FROM DERMATOMYOSITIS AND POLYMYOSITIS AND THEIR FAMILIES AND TO SUPPORT AND PROMOTE MEDICAL RESEARCH INTO THE SEARCH FOR A CURE FOR AND FOR BETTER TREATMENT OF THE DISEASES INCLUDING THE PROVISON OF FUNDS AND EQUIPMENT TO SUFFERERS AND THEIR FAMILIES AND TO MEDICAL RESEARCH.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
146 NEWTOWN ROAD
SOUTHAMPTON
SO19 9HR
Phone:
023 8044 9708
Email:
msg@myositis.org.uk
Website:

www.myositis.org.uk Open in new window