SARCOIDOSISUK

Charity number: 1063986
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Supply quality information online and in leaflets. Provide support through nurse helpline, support groups and online support forum. Raise awareness in both healthcare community and general public. Fund medical research into effective treatments and a cure.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £180,570
Total expenditure: £166,873

People

9 Trustee(s)

21 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 15 August 1997: Standard registration
Organisation type:
Other
Other names:
  • SILA (Working name)
  • SARCOIDISIS AND INTERSTITIAL LUNG ASSOCIATION (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Emily Jane Sturdy Trustee 20 May 2024
SARCOIDOSISUK
Recently registered
Dr Dawn Mary Farrar Trustee 20 May 2024
SARCOIDOSISUK
Recently registered
Dawn Clements Trustee 20 May 2024
SARCOIDOSISUK
Recently registered
Dr Roma Aileen Armstrong Trustee 20 May 2024
None on record
Jack Richardson Trustee 21 February 2022
SARCOIDOSISUK
Recently registered
Richard Jean-Pierre Donald Etienne Trustee 18 July 2019
SARCOIDOSISUK
Recently registered
Susan Wilson Trustee 27 March 2017
None on record
John Richard Cordner Trustee 24 March 2016
SARCOIDOSISUK
Recently registered
Paul Sinclare Trustee
SARCOIDOSISUK
Recently registered

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £209.63k £215.65k £280.63k £172.97k £180.57k
Total expenditure £176.17k £194.24k £142.03k £191.01k £166.87k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 25 October 2024 On Time
Accounts and TAR 31 December 2023 25 October 2024 On Time Download Open in new window
Annual return 31 December 2022 24 October 2023 On Time
Accounts and TAR 31 December 2022 24 October 2023 On Time Download Open in new window
Annual return 31 December 2021 30 September 2022 On Time
Accounts and TAR 31 December 2021 30 September 2022 On Time Download Open in new window
Annual return 31 December 2020 28 October 2021 On Time
Accounts and TAR 31 December 2020 28 October 2021 On Time Download Open in new window
Annual return 31 December 2019 29 October 2020 On Time
Accounts and TAR 31 December 2019 29 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 18 NOV 1996 AS AMENDED ON 29 MAY 1997 AS AMENDED ON 27 MAR 2017 as amended on 21 May 2018 as amended on 18 Jul 2019 as amended on 18 Jul 2019

Charitable objects

TO RELIEVE PEOPLE SUFFERING FROM SARCOIDOSIS AND INTERSTITIAL LUNG CONDITION AND TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL ASPECTS OF THESE CONDITIONS

Area of benefit

The area the charity can operate in, as set out in its governing document.

GREATER LONDON

Contact information

Address:
214 China Works
100 Black Prince Road
London
SE1 7SJ
Phone:
02033897221
Email:
info@sarcoidosisuk.org
Website:

www.sarcoidosisuk.org Open in new window