THE DYSTONIA SOCIETY
Charity number: 1062595
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites: Linking people affected by dystonia, including a network of local groups Raising awareness of dystonia and the Society Providing information and support Improving access to treatment and other services and promoting best practice Progressing research
Income and expenditure
Data for financial year ending 31 March 2025
Total income: £422,337
Total expenditure: £402,567
People
9 Trustee(s)
25 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
What the charity does:
- The Advancement Of Health Or Saving Of Lives
- Disability
Who the charity helps:
- People With Disabilities
How the charity helps:
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Services
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
Where the charity operates:
- Throughout England And Wales
- Northern Ireland
- Scotland
Governance
Registration history:
- 02 June 1997: Standard registration
Organisation type:
Charitable company
Other names:
No other names
Company number:
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Land and property:
This charity owns and/or leases land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
9 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Qamar Khan MBE | Trustee | 15 January 2024 |
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| Ntonella Macerolla | Trustee | 28 November 2023 |
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| Dr Amit Batla | Trustee | 28 November 2023 |
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| Sophie Eleanor Norman | Trustee | 07 September 2023 |
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| Fermanda Perez | Trustee | 07 September 2023 |
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| Emily Birden | Trustee | 04 September 2023 |
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| Robert Harold William Semple | Trustee | 01 March 2021 |
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| Timothy John Gannicliffe | Trustee | 12 September 2019 |
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| Penny Ritchie-Calder | Trustee | 09 May 2019 |
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Financial history
Financial period end date
| Income / Expenditure | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | 31/03/2025 | ||
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Total gross income | £421.98k | £293.05k | £277.41k | £692.35k | £422.34k | |
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Total expenditure | £310.10k | £262.28k | £285.77k | £321.28k | £402.57k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A | |
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Income - Donations and legacies | N/A | N/A | N/A | £417.06k | N/A | |
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Income - Other trading activities | N/A | N/A | N/A | £1.96k | N/A | |
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Income - Charitable activities | N/A | N/A | N/A | £264.42k | N/A | |
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Income - Endowments | N/A | N/A | N/A | £0 | N/A | |
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Income - Investment | N/A | N/A | N/A | £8.92k | N/A | |
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Income - Other | N/A | N/A | N/A | £0 | N/A | |
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Income - Legacies | N/A | N/A | N/A | £417.06k | N/A | |
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Expenditure - Charitable activities | N/A | N/A | N/A | £245.54k | N/A | |
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Expenditure - Raising funds | N/A | N/A | N/A | £75.74k | N/A | |
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Expenditure - Governance | N/A | N/A | N/A | £9.41k | N/A | |
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Expenditure - Grants institution | N/A | N/A | N/A | £0 | N/A | |
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Expenditure - Investment management | N/A | N/A | N/A | £0 | N/A | |
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Expenditure - Other | N/A | N/A | N/A | £0 | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 March 2025 | 22 December 2025 | On time | |
| Accounts and TAR | 31 March 2025 | 22 December 2025 | On time | Download Open in new window |
| Annual return | 31 March 2024 | 28 December 2024 | On time | |
| Accounts and TAR | 31 March 2024 | 28 December 2024 | On time | Download Open in new window |
| Annual return | 31 March 2023 | 12 December 2023 | On time | |
| Accounts and TAR | 31 March 2023 | 12 December 2023 | On time | Download Open in new window |
| Annual return | 31 March 2022 | 31 December 2022 | On time | |
| Accounts and TAR | 31 March 2022 | 31 December 2022 | On time | Download Open in new window |
| Annual return | 31 March 2021 | 23 December 2021 | On time | |
| Accounts and TAR | 31 March 2021 | 23 December 2021 | On time | Download Open in new window |