ALSTROM SYNDROME UK

Charity number: 1071196
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £379,388
Total expenditure: £335,401

Total income includes £187,700 from 1 government contract(s)

People

10 Trustee(s)

5 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Human Resources
  • Provides Buildings/facilities/open Space
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 25 August 1998: Standard registration
Organisation type:
Charitable company
Other names:
  • AS UK (Working name)
Company number:
03557191 Open in new window
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

10 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Sharon Bates Chair 02 November 2019
NORTH DEVON AGAINST DOMESTIC ABUSE LIMITED
Received: On time
Alisha Sadique Trustee 15 October 2025
None on record
Alexandra Rayson Line Trustee 01 April 2024
None on record
Tarekegn Hiwot Trustee 23 November 2023
None on record
TREVOR PARKIN Trustee 21 June 2023
None on record
JANE ELIZABETH Biglin Trustee 18 July 2022
None on record
Mathilde Victoria Yates Trustee 18 July 2022
THE FRIENDS OF POLEBROOK SCHOOL
Received: On time
Haris Hamid Trustee 09 March 2022
None on record
Carol Prescott Trustee 09 March 2022
None on record
Prof. Timothy Barrett Trustee 02 November 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2021 31/03/2022 31/03/2023 31/03/2024 31/03/2025
Total gross income £375.02k £300.02k £370.77k £354.67k £379.39k
Total expenditure £232.27k £303.19k £364.84k £340.99k £335.40k
Income from government contracts £165.60k £165.60k £171.06k £0 £187.70k
Income from government grants N/A N/A N/A £0 N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2025 03 December 2025 On time
Accounts and TAR 31 March 2025 03 December 2025 On time Download Open in new window
Annual return 31 March 2024 09 December 2024 On time
Accounts and TAR 31 March 2024 09 December 2024 On time Download Open in new window
Annual return 31 March 2023 06 December 2023 On time
Accounts and TAR 31 March 2023 06 December 2023 On time Download Open in new window
Annual return 31 March 2022 28 November 2022 On time
Accounts and TAR 31 March 2022 28 November 2022 On time Download Open in new window
Annual return 31 March 2021 15 December 2021 On time
Accounts and TAR 31 March 2021 15 December 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 1ST MAY 1998. as amended on 09 Apr 2025

Charitable objects

1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
The Rectory
Barnstaple Hill
Swimbridge
BARNSTAPLE
Devon
EX32 0PH
Phone:
07980122404
Email:
steve.scoffield@alstrom.org.uk
Website:

www.alstrom.org.uk Open in new window