CYSTINOSIS FOUNDATION OF THE UK

Charity Number: 1074885
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To provide support to anyone diagnosed with cystinosis, as well as their families and friends. To highlight the disorder to members, the medical profession and the wider community. To assist in the promotion of research into the treatment of cystinosis. To work alongside other similar organisations in understanding more about metabolic disorders in general

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £21,084
Total expenditure: £16,033

People

6 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 26 March 1999: Standard registration
Organisation type:
Other
Other names:
  • CYSTINOSIS FOUNDATION - UK AND EIRE (Previous name)
  • CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
William George Newman Chair 23 February 2020
None on record
Karthikeyan Ekambaram Trustee 23 February 2020
None on record
Alexandra Innes Hutchison Trustee 23 February 2020
None on record
Thomas Ian Kenning Trustee 23 February 2014
None on record
DAVID NIGEL BENFORD Trustee
None on record
Neil Andrew Sugden Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £29.12k £20.28k £21.44k £45.28k £21.08k
Total expenditure £21.61k £10.84k £5.66k £115.89k £16.03k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 November 2024 On Time
Accounts and TAR 31 March 2024 Not Required
Annual return 31 March 2023 29 May 2024 119 days late
Accounts and TAR 31 March 2023 29 May 2024 119 days late Download Open in new window
Annual return 31 March 2022 18 January 2023 On Time
Accounts and TAR 31 March 2022 Not Required
Annual return 31 March 2021 14 March 2022 42 days late
Accounts and TAR 31 March 2021 Not Required
Annual return 31 March 2020 24 March 2021 52 days late
Accounts and TAR 31 March 2020 24 March 2021 52 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

DECLARATION OF TRUST DATED 2 FEBRUARY 1998

Charitable objects

TO RELIEVE PERSONS SUFFERING FROM CYSTINOSIS AND MEMBERS OF THEIR IMMEDIATE FAMILIES WHO ARE NECESSITOUS CIRCUMSTANCES IN PARTICULAR BY THE PROVISION OF INFORMATION AND FINANCIAL SUPPORT AND BY RAISING PUBLIC AWARENESS OF THE DISORDER.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Cystinosis Foundation UK
Unit 81304
PO Box 15113
Birmingham
B2 2NJ
Phone:
07976272064
Email:
advice@cystinosis.org.uk
Website:

www.cystinosis.org.uk Open in new window