XP SUPPORT GROUP

Charity number: 1075302
Removed charity

Charity overview

Activities - how the charity spends its money

Supporting families with Xeroderma Pigmentosum or UV or light sensitivities, by exchange of information, and by giving of grants for UV protective equipment. We fund travel and accommodation expenses to attend the National XP Service at the Rare Disease Centre at St Thomas' Hospital, London. We run an annual night time camp called the Owl Patrol. Issue a Newsletter 2 times a year

Income and expenditure

Data for financial year ending 31 March 2022

Total income: £28,132
Total expenditure: £37,736

Fundraising

This charity raises funds from the public but does not work with professional fundraisers or commercial participators.

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 29 April 1999: Standard registration
  • 25 January 2023: Removed (Transferred to exempt chy)
Organisation type:
Other
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Financial history

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Financial period end date

Income / Expenditure 31/03/2018 31/03/2019 31/03/2020 31/03/2021 31/03/2022
Total gross income £81.35k £46.79k £34.69k £65.42k £28.13k
Total expenditure £78.22k £41.31k £37.48k £17.45k £37.74k
Income from government contracts £0 N/A N/A N/A N/A
Income from government grants £0 N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2022 16 January 2023 On time
Accounts and TAR 31 March 2022 16 January 2023 On time
Annual return 31 March 2021 05 January 2022 On time
Accounts and TAR 31 March 2021 05 January 2022 On time
Annual return 31 March 2020 09 February 2021 9 days late
Accounts and TAR 31 March 2020 09 February 2021 9 days late
Annual return 31 March 2019 11 December 2019 On time
Accounts and TAR 31 March 2019 11 December 2019 On time

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

DECLARATION OF TRUST DATED 27 MAR 1999 AS AMENDED BY DEED DATED 27 NOV 2016

Charitable objects

1) TO RELIEVE THE NEED OF PERSONS WITH XERODERMA PIGMENTOSUM (XP)AND RELATED CONDITIONS AND THEIR FAMILIES 2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN XERODERMA PIGMENTOSUM 3) TO PROMOTE RESEARCH INTO XERODERMA

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED