PROTEUS SYNDROME FOUNDATION UK

Charity overview
Activities - how the charity spends its money
The relief of persons with Proteus Syndrome and the relief of their families and carers. The advancement of the education of the public in the subject of proteus syndrome. The promotion of research in to the cause and treatment of Proteus Syndrome ensuring that useful results are published
Income and expenditure
Data for financial year ending 31 July 2023
People

3 Trustee(s)
Employees with total benefits over £60,000
No information availableFundraising
Trading
Trustee payments
What, who, how, where
- General Charitable Purposes
- Education/training
- The Advancement Of Health Or Saving Of Lives
- Disability
- Children/young People
- People With Disabilities
- Makes Grants To Individuals
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Throughout England And Wales
Governance
- 14 October 1999: Standard registration
No other names
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
3 Trustee(s)
Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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AMANDA SUMMERS | Trustee | 08 May 2012 |
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TRACEY WHITEWOOD-NEAL | Trustee | 14 October 1999 |
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DEBRA LYNN MILTON | Trustee |
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Financial history
Financial period end date
Income / Expenditure | 31/07/2019 | 31/07/2020 | 31/07/2021 | 31/07/2022 | 31/07/2023 | ||
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Total gross income | £2.36k | £1.89k | £3.02k | £3.32k | £2.78k | |
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Total expenditure | £10.72k | £5.50k | £2.54k | £2.06k | £479 | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A |
Accounts and annual returns
Title | Reporting year | Date received | Received | Download |
---|---|---|---|---|
Annual return | 31 July 2023 | 25 June 2024 | 25 days late | |
Accounts and TAR | 31 July 2023 | Not Required | ||
Annual return | 31 July 2022 | 28 March 2023 | On Time | |
Accounts and TAR | 31 July 2022 | Not Required | ||
Annual return | 31 July 2021 | 12 April 2022 | On Time | |
Accounts and TAR | 31 July 2021 | Not Required | ||
Annual return | 31 July 2020 | 24 August 2020 | On Time | |
Accounts and TAR | 31 July 2020 | Not Required | ||
Annual return | 31 July 2019 | 24 August 2020 | 85 days late | |
Accounts and TAR | 31 July 2019 | Not Required |
Governing document
It is not the full text of the charity's governing document.
DECLARATION OF TRUST DATED 7 SEPTEMBER 1999
Charitable objects
1) THE RELIEF OF PERSONS WITH PROTEUS SYNDROME AND THE RELIEF OF THEIR FAMILIES AND CARERS. 2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF PROTEUS SYNDROME. 3) THE PROMOTION OF RESEARCH INTO THE CAUSE AND TREATMENT OF PROTEUS SYNDROME ENSURING THAT USEFUL RESULTS ARE PUBLISHED.
Area of benefit
NOT DEFINED
Contact information
- Address:
-
2 watermill close
Bexhill
East Sussex
TN39 5EJ
- Phone:
- 07740 085919
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