THE NEUROFIBROMATOSIS ASSOCIATION

Charity number: 1078790
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The charity's mission is to enable people concerned about neurofibromatosis to find solutions appropriate for them.

Income and expenditure

Data for financial year ending 31 October 2023

Total income: £456,409
Total expenditure: £424,665

People

7 Trustee(s)

1 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Provides Human Resources
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 05 January 2000: Standard registration
Organisation type:
Charitable company
Other names:
  • Nerve Tumours UK (Working name)
  • NFA (Previous name)
  • THE NEURO FOUNDATION (Previous name)
Company number:
03798407 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Richard Eric Greenway Goode Chair 28 November 2015
None on record
Matthew William Buchan Jones Trustee 14 June 2021
None on record
Professor Meena Upadhyaya Trustee 14 June 2021
RACE COUNCIL CYMRU
Received: On time
THE LEARNED SOCIETY OF WALES
Received: On time
RACE EQUALITY FIRST LIMITED
Received: On time
Jonathan Peter Bruce Trustee 08 June 2020
THE FITZGERALD FOUNDATION
Recently registered
Alexis Rohan Chanmugam Trustee 08 June 2020
None on record
Professor Rosalie Elaine Ferner Trustee 17 June 2017
None on record
Michael Ezran Fry Trustee 07 June 2014
None on record

Financial history

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Financial period end date

Income / Expenditure 31/10/2019 31/10/2020 31/10/2021 31/10/2022 31/10/2023
Total gross income £467.36k £325.24k £397.17k £512.52k £456.41k
Total expenditure £423.53k £330.72k £390.59k £448.33k £424.67k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A £60.00k N/A N/A N/A
Income - Donations and legacies N/A N/A N/A £424.50k N/A
Income - Other trading activities N/A N/A N/A £0 N/A
Income - Charitable activities N/A N/A N/A £87.35k N/A
Income - Endowments N/A N/A N/A £0 N/A
Income - Investment N/A N/A N/A £668 N/A
Income - Other N/A N/A N/A £0 N/A
Income - Legacies N/A N/A N/A £145.00k N/A
Expenditure - Charitable activities N/A N/A N/A £342.20k N/A
Expenditure - Raising funds N/A N/A N/A £106.13k N/A
Expenditure - Governance N/A N/A N/A £7.02k N/A
Expenditure - Grants institution N/A N/A N/A £0 N/A
Expenditure - Investment management N/A N/A N/A £0 N/A
Expenditure - Other N/A N/A N/A £0 N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 October 2023 04 June 2024 On Time
Accounts and TAR 31 October 2023 04 June 2024 On Time Download Open in new window
Annual return 31 October 2022 12 June 2023 On Time
Accounts and TAR 31 October 2022 12 June 2023 On Time Download Open in new window
Annual return 31 October 2021 07 June 2022 On Time
Accounts and TAR 31 October 2021 07 June 2022 On Time Download Open in new window
Annual return 31 October 2020 15 June 2021 On Time
Accounts and TAR 31 October 2020 15 June 2021 On Time Download Open in new window
Annual return 31 October 2019 09 June 2020 On Time
Accounts and TAR 31 October 2019 09 June 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 30TH JUNE 1999 AS AMENDED BY SPECIAL RESOLUTION DATED 7 FEBRUARY 2009

Charitable objects

TO RELIEVE PERSONS SUFFERING FROM NEUROFIBROMATOSIS.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
First Floor
44 Coombe Lane
London
SW20 0LA
Phone:
02084391234
Email:
info@nervetumours.org.uk
Website:

www.nervetumours.org.uk Open in new window