THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS

Charity number: 1079504
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

Income and expenditure

Data for financial year ending 30 June 2024

Total income:
£595,025

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Donations and legacies £29.17k
Charitable activities £90.04k
Other trading activities £0
Investments £0
Other £475.82k

Total expenditure:
£693,541

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Raising funds £0
Charitable activities £693.54k
Other £0

£0 investments gains (losses)

Charitable expenditure

Charitable expenditure

Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.

In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.

Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.

By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.

Text alternative for this canvas graphic is in the data table below.
Raising funds and other expenditure £0
Charitable expenditure £693.54k

People

1 Employee(s)

11 Trustee(s)

Employees with total benefits over £60,000

Number of employees
£90k to £100k 1

One or more of the employees were formerly trustees

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Northamptonshire
  • Argentina
  • Belgium
  • Canada
  • China
  • Colombia
  • Croatia
  • France
  • Germany
  • Iceland
  • India
  • Ireland
  • Israel
  • Netherlands
  • Russia
  • Scotland
  • South Africa
  • Spain
  • United States

Governance

Registration history:
  • 23 February 2000: Standard registration
Organisation type:
Charitable company
Other names:

No other names

Company number:
03739783 Open in new window
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Calaneet Hadassah Balas Chair 05 December 2017
None on record
Jennifer Bedford Trustee 01 January 2025
None on record
Mary Ellen Bench Trustee 01 January 2025
None on record
Clare Sullivan Trustee 01 January 2025
None on record
Riccardo Zuccarino Trustee 01 January 2025
None on record
Evy Reviers Trustee 01 January 2025
None on record
Angela Harris Trustee 01 January 2024
None on record
Tammy Moore Trustee 01 December 2023
None on record
Dr Gethin Thomas Trustee 01 December 2023
None on record
Yohei Yomada Trustee 29 November 2022
None on record
Marcela Santos Trustee 19 November 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Total gross income £179.91k £164.20k £374.81k £633.87k £595.03k
Total expenditure £207.55k £228.14k £345.57k £585.96k £693.54k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A
Income - Donations and legacies N/A N/A N/A £90.63k £29.17k
Income - Other trading activities N/A N/A N/A £0 £0
Income - Charitable activities N/A N/A N/A £129.15k £90.04k
Income - Endowments N/A N/A N/A £0 £0
Income - Investment N/A N/A N/A £0 £0
Income - Other N/A N/A N/A £414.08k £475.82k
Income - Legacies N/A N/A N/A £0 £0
Expenditure - Charitable activities N/A N/A N/A £800 £693.54k
Expenditure - Raising funds N/A N/A N/A £585.16k £0
Expenditure - Governance N/A N/A N/A £0 £0
Expenditure - Grants institution N/A N/A N/A £0 £0
Expenditure - Investment management N/A N/A N/A £0 £0
Expenditure - Other N/A N/A N/A £0 £0

Assets and liabilities

Definitions for assets and liabilities
Own use assets

These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.

Long term Investments

Investments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.

Other assets

These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.

Defined benefit pension scheme asset or liability

This is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.

Total liabilities

These are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.

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Asset / Liability 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Own use assets N/A N/A N/A £0 £0
Long-term investments N/A N/A N/A £0 £0
Other assets N/A N/A N/A £229.87k £268.79k
Defined benefit pension scheme asset or liability N/A N/A N/A £0 £0
Total liabilities N/A N/A N/A £18.37k £155.81k

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 24 February 2025 On Time
Accounts and TAR 30 June 2024 24 February 2025 On Time Download Open in new window
Annual return 30 June 2023 30 April 2024 On Time
Accounts and TAR 30 June 2023 30 April 2024 On Time Download Open in new window
Annual return 30 June 2022 21 February 2023 On Time
Accounts and TAR 30 June 2022 21 February 2023 On Time Download Open in new window
Annual return 30 June 2021 18 March 2022 On Time
Accounts and TAR 30 June 2021 18 March 2022 On Time Download Open in new window
Annual return 30 June 2020 30 March 2021 On Time
Accounts and TAR 30 June 2020 30 March 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 24TH MARCH 1999 AS AMENDED BY SPECIAL RESOLUTIONS PASSED ON 12TH NOVEMBER 1999 AND 31ST OCTOBER 2008 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 04 DEC 2016 as amended on 01 Dec 2019 as amended on 19 Nov 2020

Charitable objects

1) FOR THE RELIEF OF PERSONS WORLDWIDE WHO ARE OR WHO ARE SUSPECTED OF BEING AFFECTED BY AMYOTROPHIC LATERAL SCLEROSIS (ALS)/ MOTOR NEURONE DISEASE (MND) AND ASSOCIATED CONDITIONS; AND 2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN MATTERS RELATING TO ALS/MND

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
Francis Crick House
6 Summerhouse Road
Moulton Park
Northampton
ENGLAND
NN3 6BJ
Phone:
+1-647-203-2117
Email:
alliance@als-mnd.org
Website:

www.alsmndalliance.org Open in new window