DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK

Charity number: 1083179
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Provide support to families affected by Diamond Blackfan Anaemia. Provide information and education on the condition.

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £70,635
Total expenditure: £86,584

People

5 Trustee(s)

5 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland

Governance

Registration history:
  • 02 November 2000: Standard registration
Organisation type:
Other
Other names:
  • DBA SUPPORT GROUP UK (Working name)
  • DBA UK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Leisa Batkin Chair 05 February 2014
None on record
Eleanor May Hudson Trustee 21 May 2023
FRIENDS OF LITTLE THETFORD SCHOOL PTA
Received: On time
Joanne Hubbard Trustee 22 May 2016
None on record
Peter Redmond Trustee 05 February 2014
None on record
Jayson Whitaker Trustee
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023 31/12/2024
Total gross income £78.98k £71.33k £64.41k £78.66k £70.64k
Total expenditure £76.74k £30.60k £57.20k £71.27k £86.58k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 22 October 2025 On time
Accounts and TAR 31 December 2024 22 October 2025 On time
Annual return 31 December 2023 02 October 2024 On time
Accounts and TAR 31 December 2023 02 October 2024 On time
Annual return 31 December 2022 18 October 2023 On time
Accounts and TAR 31 December 2022 18 October 2023 On time
Annual return 31 December 2021 28 October 2022 On time
Accounts and TAR 31 December 2021 28 October 2022 On time
Annual return 31 December 2020 29 October 2021 On time
Accounts and TAR 31 December 2020 29 October 2021 On time
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 22 JULY 2000 AS AMENDED 16 SEPTEMBER 2000 as amended on 09 Jul 2019

Charitable objects

A) FOR THE RELIEF OF SICKNESS OF THOSE SUFFERING EITHER DIRECTLY OR INDIRECTLY FROM DIAMOND BLACKFAN ANAEMIA (DBA), AND ASSOCIATED CONDITIONS. B) TO EDUCATE THE GENERAL PUBLIC THROUGH PROMOTION OF RESEARCH AND THE DISSEMINATION OF KNOWLEDGE ABOUT DIAMOND BLACKFAN ANAEMIA (DBA).

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED. IN PRACTICE ENGLAND AND WALES, SCOTLAND AND NORTHERN IRELAND

Contact information

Address:
31 Roman Place
Leeds
LS8 2DS
Phone:
07797841489
Email:
info@diamondblackfan.org.uk
Website:

http://www.diamondblackfan.org.uk Open in new window