Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CONSTITUTION ADOPTED 14 JULY 2001 AS AMENDED ON 8 MAY 2004
AS AMENDED ON 07 MAY 2016 as amended on 15 Oct 2022
Charitable objects
THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO
A) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.
B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.
Area of benefit
The area the charity can operate in, as set out in its governing document.
