Charity overview BARTH SYNDROME TRUST
Charity number: 1100835
Removed charity
Activities - how the charity spends its money
Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.
Income and expenditure
Data for financial year ending 31 December 2018
Total income: £15,879
Total expenditure: £24,513
Fundraising
This charity raises funds from the public but does not work with professional fundraisers or commercial participators.
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
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