Governing document BARTH SYNDROME TRUST
Governing document
It is not the full text of the charity's governing document.
DECLARATION OF TRUST DATED 6 AUGUST 2003 AS AMENDED BY SUPPLEMENTAL DEED DATED 11 NOVEMBER 2003.
Charitable objects
THE RELIEF OF INDIVIDUALS AND THE FAMILIES OF INDIVIDUALS SUFFERING FROM BARTH SYNDROME WITHIN THE UNITED KINGDOM AND ELSEWHERE IN THE WORLD PARTICULARLY BY: A) THE PROVISION OF ACCESS TO THE LATEST INFORMATION IN RELATION TO THE CONDITION TO THE PUBLIC AND, IN PARTICULAR, THE FAMILIES OF SUFFERERS AND THOSE IN THE MEDICAL AND HEALTH CARE PROFESSIONS. B) THE PROMOTION AND FUNDING OF RESEARCH INTO THE CAUSES AND EFFECTS OF THE CONDITION AND THE DISSEMINATION OF THE USEFUL RESULTS OF THE SAME FOR THE BENEFIT OF THE PUBLIC.
Area of benefit
UNITED KINGDOM AND ELSEWHERE IN THE WORLD
Tell us whether you accept cookies
We use cookies to collect information about how you use your Charity Commission Account, such as pages you visit.
We use this information to better understand how you use our website so that we can improve your user experience and present more relevant content.