THE ALKAPTONURIA SOCIETY LTD

Charity number: 1101052
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £319,392
Total expenditure: £307,370

People

8 Trustee(s)

12 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

One or more trustees are also directors of the subsidiaries

Trustee payments

One or more trustees receive payments or benefits from the charity for being a trustee.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 05 December 2003: Standard registration
Organisation type:
Charitable company
Other names:
  • THE AKU SOCIETY (Working name)
Company number:
04814120 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr NICOLAS SIREAU Chair
ORCHARD
Received: On time
Prof George Bou-Gharios Trustee 17 March 2025
None on record
Jessica Barnes Trustee 10 June 2022
None on record
PROFESSOR JAMES GALLAGHER Trustee 15 May 2018
None on record
WILLIAM ANTHONY ESMOND Trustee 18 April 2018
None on record
Dr DUNCAN BATTY Trustee 18 April 2018
38TH SOUTH WEST CHESHIRE SCOUT GROUP (NANTWICH PARISH CHURCH)
Received: On time
DR LAKSHMINARAYON RAO RANGANATH Trustee
None on record
Professor ALAN SHENKIN Trustee
SANDYMOUNT CHARITABLE TRUST
Received: On time

Financial history

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Financial period end date

Income / Expenditure 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Total gross income £312.80k £335.22k £586.71k £381.04k £319.39k
Total expenditure £246.95k £272.75k £300.35k £292.62k £307.37k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A
Income - Donations and legacies N/A N/A £304.88k N/A N/A
Income - Other trading activities N/A N/A £0 N/A N/A
Income - Charitable activities N/A N/A £281.50k N/A N/A
Income - Endowments N/A N/A £0 N/A N/A
Income - Investment N/A N/A £330 N/A N/A
Income - Other N/A N/A £0 N/A N/A
Income - Legacies N/A N/A £0 N/A N/A
Expenditure - Charitable activities N/A N/A £299.75k N/A N/A
Expenditure - Raising funds N/A N/A £600 N/A N/A
Expenditure - Governance N/A N/A £5.15k N/A N/A
Expenditure - Grants institution N/A N/A £37.50k N/A N/A
Expenditure - Investment management N/A N/A £0 N/A N/A
Expenditure - Other N/A N/A £0 N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 04 November 2024 On Time
Accounts and TAR 30 June 2024 04 November 2024 On Time Download Open in new window
Annual return 30 June 2023 10 October 2023 On Time
Accounts and TAR 30 June 2023 10 October 2023 On Time Download Open in new window
Annual return 30 June 2022 28 October 2022 On Time
Accounts and TAR 30 June 2022 28 October 2022 On Time Download Open in new window
Annual return 30 June 2021 17 December 2021 On Time
Accounts and TAR 30 June 2021 17 December 2021 On Time Download Open in new window
Annual return 30 June 2020 06 November 2020 On Time
Accounts and TAR 30 June 2020 06 November 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 27/06/2003 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 18/11/2003 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 14/05/2012

Charitable objects

I) TO ADVANCE THE EDUCATION OF THE PUBLIC INTO ALL MATTERS RELATING TO ALKAPTONURIA DISEASE AND ITS CAUSES, EFFECTS AND TREATMENTS PARTICULARLY BY THE PROVISION AND MAINTENANCE OF AN INTERNET WEBSITE. II) TO RELIEVE THE SUFFERING OF PERSONS SUFFERING FROM THE DISEASE BY THE PROVISION OF INFORMATION AND ADVICE III) THE PROMOTION AND RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ALKAPTONURIA DISEASE AND DISSEMINATE THE USEFUL RESULTS THEREOF

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
66 DEVONSHIRE ROAD
CAMBRIDGE
CB1 2BL
Phone:
01223322897
Email:
info@akusociety.org
Website:

www.akusociety.org Open in new window