THE ATAXIA-TELANGIECTASIA SOCIETY
Charity Number: 1105528
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
Ataxia-Telangiectasia (A-T) is a progressive genetic condition which from early childhood causes increasingly severe disability, and shortens lives. The A-T Society is dedicated to improving quality of life and quality of care for people living with A-T while actively promoting research to lengthen lives and ultimately bring about a cure.
Income and expenditure
Data for financial year ending 31 December 2023
Total income: £478,337
Total expenditure: £662,593
Total income includes £59,233 from 1 government contract(s) and £17,356 from 1 government grant(s)
People
9 Trustee(s)
30 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
What the charity does:
- The Advancement Of Health Or Saving Of Lives
- Disability
- Arts/culture/heritage/science
Who the charity helps:
- People With Disabilities
How the charity helps:
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
Where the charity operates:
- Throughout England And Wales
- Northern Ireland
- Scotland
Governance
Registration history:
- 18 August 2004: Standard registration
- 14 March 2019: Funds received from 1002516 THE THOMAS APPEAL A-T MEDICAL RESEARCH TRUST
Organisation type:
Charitable company
Other names:
- THE A-T SOCIETY (Working name)
Company number:
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
9 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Michael Detsiny | Chair | 22 April 2015 |
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| Dr Jayesh Bhatt | Trustee | 15 July 2021 |
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| David Macdonald | Trustee | 15 July 2021 |
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| Rachel Poupard | Trustee | 15 July 2021 |
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| Joe Powell | Trustee | 15 July 2021 |
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| Nicholas Gull | Trustee | 30 June 2018 |
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| Jhilna Shah | Trustee | 24 January 2018 |
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| Penny Jeggo | Trustee | 28 January 2014 |
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| LIAN CECILIA YARLETT | Trustee |
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Financial history
Financial period end date
| Income / Expenditure | 31/12/2019 | 31/12/2020 | 31/12/2021 | 31/12/2022 | 31/12/2023 | ||
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Total gross income | £1.06m | £320.76k | £368.34k | £429.15k | £478.34k | |
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Total expenditure | £553.03k | £505.59k | £500.63k | £481.41k | £662.59k | |
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Income from government contracts | N/A | £54.33k | £55.31k | £56.89k | £59.23k | |
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Income from government grants | £51.40k | N/A | £60.11k | £72.69k | £17.36k | |
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Income - Donations and legacies | £1.05m | N/A | N/A | N/A | N/A | |
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Income - Other trading activities | £1.93k | N/A | N/A | N/A | N/A | |
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Income - Charitable activities | £11.97k | N/A | N/A | N/A | N/A | |
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Income - Endowments | £0 | N/A | N/A | N/A | N/A | |
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Income - Investment | £1.15k | N/A | N/A | N/A | N/A | |
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Income - Other | £0 | N/A | N/A | N/A | N/A | |
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Income - Legacies | £680.00k | N/A | N/A | N/A | N/A | |
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Expenditure - Charitable activities | £425.62k | N/A | N/A | N/A | N/A | |
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Expenditure - Raising funds | £127.41k | N/A | N/A | N/A | N/A | |
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Expenditure - Governance | £23.45k | N/A | N/A | N/A | N/A | |
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Expenditure - Grants institution | £0 | N/A | N/A | N/A | N/A | |
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Expenditure - Investment management | £0 | N/A | N/A | N/A | N/A | |
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Expenditure - Other | £0 | N/A | N/A | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 December 2023 | 10 October 2024 | On Time | |
| Accounts and TAR | 31 December 2023 | 10 October 2024 | On Time | Download Open in new window |
| Annual return | 31 December 2022 | 20 October 2023 | On Time | |
| Accounts and TAR | 31 December 2022 | 20 October 2023 | On Time | Download Open in new window |
| Annual return | 31 December 2021 | 20 October 2022 | On Time | |
| Accounts and TAR | 31 December 2021 | 20 October 2022 | On Time | Download Open in new window |
| Annual return | 31 December 2020 | 26 October 2021 | On Time | |
| Accounts and TAR | 31 December 2020 | 26 October 2021 | On Time | Download Open in new window |
| Annual return | 31 December 2019 | 28 October 2020 | On Time | |
| Accounts and TAR | 31 December 2019 | 28 October 2020 | On Time | Download Open in new window |