Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
DECLARATION OF TRUST DATED 24/10/2004
AS AMENDED BY DEED DATED 25/11/2004
AS AMENDED BY DEED DATED 20/04/2011 as amended on 07 Mar 2023 as amended on 31 May 2023
Charitable objects
The relief of people with known complex and intractable epilepsy and the specific neurometabolic disorder GLUT1 deficiency syndrome
by providing
a) Information and advice on the Ketogenic Diet (an alternative treatment to medication), and support for patients/parents/carers once on the diet, and
b) Any charitable means which the trustees decide including:
a) To publicise Ketogenic Dietary Therapies and make them more available to all those who should need it, be it child or adult.
b) Together with our medical board, give parents and patients an informed choice about the Ketogenic Diet and to source and provide the latest information available.
c) To support families and patients through their dietary therapy.
d) To support professionals in their administration of dietary therapies by way of literature, ketogenic starter packs and files, educational conferences and training meetings and provide funding, where possible.
e) To support Research projects into the efficacy of these dietary treatments for use in Epilepsy and other conditions, working with medical professionals to ensure our information is safe, relevant and current.
Area of benefit
The area the charity can operate in, as set out in its governing document.
