RARE CHROMOSOME DISORDER SUPPORT GROUP

Charity number: 1110661
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Unique - The Rare Chromosome Disorder Support Group, is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £396,667
Total expenditure: £369,642

People

8 Trustee(s)

200 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 01 August 2005: Standard registration
Organisation type:
Charitable company
Other names:
  • RARE CHROMOSOME DISORDER SUPPORT GROUP (Previous name)
  • UNIQUE RCD LTD (Previous name)
Company number:
05460413 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
SOPHIE PRISCILLA SAINTY Chair
None on record
James Edward Lucas Trustee 14 January 2025
None on record
Cecely Hugh Trustee 16 December 2024
None on record
Shwetha Ramachandrappa Trustee 11 October 2019
None on record
Ben Stern Trustee 14 August 2014
None on record
Helen Elizabeth Campbell Trustee 17 June 2014
None on record
FIONA CATHERINE FULTON DE ZOETE Trustee 01 May 2013
None on record
EDNA MARGARET KNIGHT MBE Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £323.84k £357.25k £304.81k £289.14k £396.67k
Total expenditure £331.43k £299.69k £343.81k £382.56k £369.64k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 October 2024 On Time
Accounts and TAR 31 March 2024 30 October 2024 On Time Download Open in new window
Annual return 31 March 2023 14 December 2023 On Time
Accounts and TAR 31 March 2023 14 December 2023 On Time Download Open in new window
Annual return 31 March 2022 17 November 2022 On Time
Accounts and TAR 31 March 2022 17 November 2022 On Time Download Open in new window
Annual return 31 March 2021 25 October 2021 On Time
Accounts and TAR 31 March 2021 25 October 2021 On Time Download Open in new window
Annual return 31 March 2020 19 January 2021 On Time
Accounts and TAR 31 March 2020 19 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 23 MAY 2005

Charitable objects

3.1 TO ASSIST AND RELIEVE SUFFERERS FROM RARE CHROMOSOME DISORDERS 3.2 TO EDUCATE THE PUBLIC REGARDING RARE CHROMOSOME DISORDERS 3.3 TO RELIEVE THE PARENTS AND CARERS OF PERSONS SUFFERING FROM RARE CHROMOSOME DISORDERS WHO ARE IN CONDITIONS OF NEED HARDSHIP OR DISTRESS

Area of benefit

The area the charity can operate in, as set out in its governing document.

NATIONAL AND OVERSEAS

Contact information

Address:
F4 The Stables
Station Road West
Oxted
Oxted
Surrey
RH8 9EE
Phone:
01883330766
Email:
info@rarechromo.org
Website:

www.rarechromo.org Open in new window