THE GARY WOODWARD DYSKERATOSIS CONGENITA TRUST

Charity Number: 1113617
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £853
Total expenditure: £1,290

People

5 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Human Resources
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 05 April 2006: Standard registration
Organisation type:
Other
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Risk management
  • Safeguarding vulnerable beneficiaries
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Ben Paul Sinfield Trustee 21 June 2017
None on record
Abigail Frances Sinfield Trustee 21 June 2017
None on record
PAUL MELVYN SINFIELD Trustee
None on record
ROCHELLE KAY BLAKE Trustee
None on record
PROFESSOR INDERJEET DOKAL Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £343 £200 £401 £16 £853
Total expenditure £707 £658 £791 £623 £1.29k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 January 2025 On Time
Accounts and TAR 31 March 2024 Not Required
Annual return 31 March 2023 30 January 2024 On Time
Accounts and TAR 31 March 2023 Not Required
Annual return 31 March 2022 30 January 2023 On Time
Accounts and TAR 31 March 2022 Not Required
Annual return 31 March 2021 30 January 2022 On Time
Accounts and TAR 31 March 2021 Not Required
Annual return 31 March 2020 27 January 2021 On Time
Accounts and TAR 31 March 2020 Not Required
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 9 AUGUST 2004

Charitable objects

(A) THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY DYSKERATOSIS CONGENITA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO; (B) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO DYSKERATOSIS CONGENITA AND ITS IMPLICATIONS FOR THE FAMILY. (C) THE PROMOTION F RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF DYSKERATOSIS CONGENITA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
PO BOX 115
SANDY
BEDFORDSHIRE
SG19 1WZ
Phone:
01767689757
Email:
enquiries@dyskeratosiscongenita.org.uk
Website:

www.dyskeratosiscongenita.org.uk Open in new window