AMY AND FRIENDS

Charity number: 1119746
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £417,007
Total expenditure: £374,357

People

5 Trustee(s)

49 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 20 June 2007: Standard registration
Organisation type:
Other
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
ROY MCGUNIGALL Chair
None on record
Phillipa Sellars Trustee 01 April 2025
None on record
Jodie Barden Trustee 01 April 2025
None on record
Shaun Fanning Trustee 08 December 2016
None on record
MARK HUGHES Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2021 31/03/2022 31/03/2023 31/03/2024 31/03/2025
Total gross income £244.57k £248.58k £325.40k £262.46k £417.01k
Total expenditure £246.58k £243.05k £318.47k £234.89k £374.36k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2025 08 January 2026 On time
Accounts and TAR 31 March 2025 08 January 2026 On time Download Open in new window
Annual return 31 March 2024 30 December 2024 On time
Accounts and TAR 31 March 2024 30 December 2024 On time Download Open in new window
Annual return 31 March 2023 30 January 2024 On time
Accounts and TAR 31 March 2023 30 January 2024 On time Download Open in new window
Annual return 31 March 2022 09 January 2023 On time
Accounts and TAR 31 March 2022 09 January 2023 On time Download Open in new window
Annual return 31 March 2021 24 January 2022 On time
Accounts and TAR 31 March 2021 24 January 2022 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 21 FEB 2007 AS AMENDED 23 MAY 2007.

Charitable objects

FOR THE RELIEF OF PEOPLE SUFFERING WITH COCKAYNE SYNDROME AND THE PRESERVATION AND PROTECTION OF THE GOOD HEALTH OF THE FAMILIES AND CARERS OF SUCH PERSONS.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED.

Contact information

Address:
OXTON CONSERVATIVE CLUB
VILLAGE ROAD
PRENTON
CH43 5SR
Phone:
01516384665
Email:
jayne@amyandfriends.org
Website:

www.amyandfriends.org Open in new window