ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS

Charity Number: 1133182
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

Income and expenditure

Data for financial year ending 31 August 2023

Total income: £8,847
Total expenditure: £33,936

People

5 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Oxfordshire
  • France
  • Germany
  • Italy
  • Japan
  • Netherlands
  • Portugal
  • Spain
  • Switzerland
  • United States

Governance

Registration history:
  • 08 December 2009: Standard registration
Organisation type:
Charitable company
Other names:
  • N A FUND (Working name)
Company number:
07000073 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Paying staff
  • Risk management
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
GINGER IRVINE Chair
BRIGHTER KENSINGTON AND CHELSEA SCHEME
Received: On time
Nicola Keat Trustee 01 July 2022
None on record
Mary Elizabeth Leigh-Wood Trustee 04 December 2019
None on record
Dr Peter George Mills Trustee 04 December 2019
None on record
Neil Price Trustee 25 May 2016
DAY'S AND ATKINSON'S ALMSHOUSE CHARITY
Received: On time

Financial history

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Financial period end date

Income / Expenditure 31/08/2019 31/08/2020 31/08/2021 31/08/2022 31/08/2023
Total gross income £183.09k £182.14k £15.08k £90.10k £8.85k
Total expenditure £87.22k £100.25k £89.20k £16.79k £33.94k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 August 2023 04 July 2024 4 days late
Accounts and TAR 31 August 2023 Not Required
Annual return 31 August 2022 29 May 2023 On Time
Accounts and TAR 31 August 2022 29 May 2023 On Time Download Open in new window
Annual return 31 August 2021 07 June 2022 On Time
Accounts and TAR 31 August 2021 Not Required
Annual return 31 August 2020 18 June 2021 On Time
Accounts and TAR 31 August 2020 18 June 2021 On Time Download Open in new window
Annual return 31 August 2019 29 May 2020 On Time
Accounts and TAR 31 August 2019 29 May 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 25 AUGUST 2009

Charitable objects

1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF NEUROACANTHOCYTOSIS DISEASES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE 2 TO ADVANCE THE EDUCATION OF HEALTH PROFESSIONALS AND THE GENERAL PUBLIC IN AL AREAS RELATING TO NEUROACANTHOCYTOSIS DISEASES

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNDEFINED. IN PRACTICE, NATIONAL AND OVERSEAS.

Contact information

Address:
Flat 39
Coleherne Court
The Little Boltons
LONDON
SW5 0DN
Phone:
02074608874
Email:
ginger@naadvocacy.org
Website:

www.naadvocacy.org Open in new window