MYOTONIC DYSTROPHY SUPPORT GROUP

Charity number: 1134499
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To offer assistance, support and information to those people affected by Myotonic Dystrophy

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £336,393
Total expenditure: £128,492

People

7 Trustee(s)

7 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity and another benefit.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Human Resources
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 25 February 2010: Standard registration
  • 28 November 2011: Funds received from 1073211 MYOTONIC DYSTROPHY SUPPORT GROUP
Organisation type:
Charitable company
Other names:

No other names

Company number:
07144171 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Financial reserves policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Social media policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MICHAEL WALKER Chair 31 December 2011
None on record
Dr Valeria Di Leo Trustee 16 May 2025
None on record
Dr Ami Ketley Trustee 16 June 2023
None on record
Linda Ann Perry Trustee 16 June 2023
None on record
Claire Alexandra McAlonan Trustee 28 January 2021
None on record
Euan Daniel Cumming Trustee 23 June 2017
None on record
Peter Charles William Ferrari Trustee 24 June 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023 31/12/2024
Total gross income £115.34k £216.30k £109.67k £258.79k £336.39k
Total expenditure £80.57k £150.97k £63.16k £117.90k £128.49k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 21 May 2025 On time
Accounts and TAR 31 December 2024 21 May 2025 On time Download Open in new window
Annual return 31 December 2023 13 June 2024 On time
Accounts and TAR 31 December 2023 13 June 2024 On time Download Open in new window
Annual return 31 December 2022 03 May 2023 On time
Accounts and TAR 31 December 2022 03 May 2023 On time Download Open in new window
Annual return 31 December 2021 07 April 2022 On time
Accounts and TAR 31 December 2021 07 April 2022 On time Download Open in new window
Annual return 31 December 2020 14 June 2021 On time
Accounts and TAR 31 December 2020 14 June 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 02/02/2010

Charitable objects

THE COMPANY'S OBJECT ARE SPECIFICALLY RESTRICTED TO OFFERING ASSISTANCE, SUPPORT AND INFORMATION TO THOSE PEOPLE AFFECTED BY MYOTONIC DYSTROPHY, THEIR CARERS AND FAMILIES, BOTH DIRECTLY AND INDIRECTLY, AND ANYTHING DONE IN REASONABLE PURSUANCE THERETO.

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNDEFINED. IN PRACTICE, NATIONAL

Contact information

Address:
19-21 MAIN ROAD
GEDLING
NOTTINGHAM
NG4 3HQ
Phone:
01159875869
Email:
CONTACT@MDSGUK.ORG
Website:

myotonicdystrophysupportgroup.org