Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
TRUST DEED 04 MAY 2008
Charitable objects
1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE.
2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC.
3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES.
4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.
Area of benefit
The area the charity can operate in, as set out in its governing document.
