ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED

Charity number: 1132271
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £242,277
Total expenditure: £197,548

People

7 Trustee(s)

37 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Human Resources
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 22 October 2009: Standard registration
Organisation type:
Charitable company
Other names:
  • AGSD (UK) (Working name)
  • POMPE UK (Working name)
Company number:
06981121 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Florence Osbourne Chair 01 May 2021
None on record
Kempton Rees Trustee 15 January 2023
None on record
Dr Charlotte Dawson Trustee 15 January 2023
None on record
Rachel Thomas Trustee 15 July 2020
None on record
Sarah Chikhani Trustee 12 July 2020
None on record
Ailsa Arthur Trustee 29 October 2017
None on record
Nick Jones Trustee 16 October 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £205.80k £122.88k £131.75k £143.72k £242.28k
Total expenditure £217.13k £141.67k £144.85k £156.76k £197.55k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 January 2025 On Time
Accounts and TAR 31 March 2024 30 January 2025 On Time Download Open in new window
Annual return 31 March 2023 23 January 2024 On Time
Accounts and TAR 31 March 2023 23 January 2024 On Time Download Open in new window
Annual return 31 March 2022 15 January 2023 On Time
Accounts and TAR 31 March 2022 15 January 2023 On Time Download Open in new window
Annual return 31 March 2021 29 January 2022 On Time
Accounts and TAR 31 March 2021 29 January 2022 On Time Download Open in new window
Annual return 31 March 2020 03 January 2021 On Time
Accounts and TAR 31 March 2020 03 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 5 AUGUST 2009

Charitable objects

THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGEN STORAGE DISEASE

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNDEINED. IN PRACTICE, NATIONAL

Contact information

Address:
A G S D UK
PO Box 699
SOUTHAMPTON
SO50 0QT
Phone:
0300 123 2790
Email:
info@agsd.org.uk
Website:

www.agsd.org.uk Open in new window