NOONAN SYNDROME ASSOCIATION

Charity Number: 1140671
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc. RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk. RAISING AWARENESS of the condition

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £30,427
Total expenditure: £48,332

People

7 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 03 March 2011: Standard registration
Organisation type:
Other
Other names:
  • NSA (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jeanette Dyer Trustee 18 May 2020
None on record
Grayson Colin Bowler Trustee 18 May 2020
None on record
Brian Edward Carlton Trustee 20 November 2017
None on record
Andrea Dawn Reid-Kelly Trustee 20 November 2017
None on record
Sharon Louise Allsopp Trustee 18 January 2014
None on record
IAN ALEXANDER LEGG BAHon ACIB Trustee
None on record
PROFESSOR MICHAEL PATTON Trustee
NEWLIFE THE CHARITY FOR DISABLED CHILDREN
Received: On time

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £52.16k £66.30k £63.26k £59.90k £30.43k
Total expenditure £41.11k £32.32k £39.07k £80.47k £48.33k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 January 2025 On Time
Accounts and TAR 31 March 2024 30 January 2025 On Time Download Open in new window
Annual return 31 March 2023 31 January 2024 On Time
Accounts and TAR 31 March 2023 31 January 2024 On Time Download Open in new window
Annual return 31 March 2022 27 January 2023 On Time
Accounts and TAR 31 March 2022 27 January 2023 On Time Download Open in new window
Annual return 31 March 2021 27 January 2022 On Time
Accounts and TAR 31 March 2021 27 January 2022 On Time Download Open in new window
Annual return 31 March 2020 25 January 2021 On Time
Accounts and TAR 31 March 2020 25 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION 07 JAN 2011 AS AMENDED 1 MARCH 2011 as amended on 27 Apr 2021

Charitable objects

THE RELIEF OF ALL PERSONS AFFECTED BY NOONAN SYNDROME BY ALL OR ANY OF THE FOLLOWING MEANS:- 1) THE FACILITATION AND PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, DIAGNOSIS, TREATMENT AND RELIEF OF NOONAN SYNDROME WITH THE USEFUL RESULTS OF THE RESEARCH BEING DISSEMINATED FOR THE BENEFIT OF THE PUBLIC; 2) THE PROVISION OF FACILITIES, FINANCIAL AID, ADVICE AND SUPPORT SERVICES FOR PERSONS SUFFERING FROM NOONAN SYNDROME, THEIR FAMILIES, DEPENDANTS AND CARERS, INCLUDING THE FAMILIES AND DEPENDANTS OF THOSE WHO HAVE DIED FROM NOONAN SYNDROME AND PREGNANT MOTHERS WHERE IT IS BELIEVED THAT THEIR CHILD IS IN DANGER OF BEING BORN WITH NOONAN SYNDROME; AND 3) BY ADVANCING THE EDUCATION OF THE PUBLIC IN RELATION TO THE EFFECTS OF NOONAN SYNDROME BY COMMUNICATING REPORTS AND DISSEMINATING INFORMATION BY ANY MEANS OR MEDIA CONCERNING RESEARCH WORK AND STUDIES UNDERTAKEN BY OR ON BEHALF OF THE CHARITY.

Contact information

Address:
PO Box 692
Blackburn
Lancashire
BB2 9RF
Phone:
07920031635
Email:
info@noonansyndrome.org.uk
Website:

www.noonansyndrome.org.uk Open in new window