Gene People

Charity overview
Activities - how the charity spends its money
GENE PEOPLE (FORMERLY GENETIC DISORDERS UK) WAS CREATED IN 2011 WITH THE VISION OF IMPROVING THE LIVES OF THOSE AFFECTED BY GENETIC CONDITIONS. THE CHARITY OFFERs SUPPORT AND INFORMATION TO AFFECTED INDIVIDUALS AND FAMILIES, AND PROVIDE RESOURCES FOR CONDITION-SPECIFIC UK-BASED SUPPORT GROUPS AND CHARITIES.
Income and expenditure
Data for financial year ending 31 March 2024
People

9 Trustee(s)
4 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
Trading
Trustee payments
What, who, how, where
- Education/training
- The Advancement Of Health Or Saving Of Lives
- Disability
- Children/young People
- People With Disabilities
- Other Charities Or Voluntary Bodies
- Makes Grants To Organisations
- Provides Services
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Acts As An Umbrella Or Resource Body
- Throughout England And Wales
Governance
- 26 April 2011: Standard registration
- GDUK (Working name)
- Gene People (Working name)
- GENE PEOPLE (Previous name)
- GENETIC DISORDERS UK (Previous name)
- JEANS FOR GENES (Previous name)
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Volunteer management
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
9 Trustee(s)
Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||||
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Alastair Kent OBE | Chair | 23 November 2020 |
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Dr Christine Hilcenko | Trustee | 18 December 2024 |
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Nigel Lorenzo Nicholls | Trustee | 19 March 2024 |
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Dr Charles Steward | Trustee | 31 January 2024 |
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Arti Patel | Trustee | 26 June 2023 |
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Christopher John Conway | Trustee | 31 March 2022 |
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Dr Nicola Taverner | Trustee | 19 March 2022 |
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Derek Ansel | Trustee | 10 March 2022 |
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Saurav Mitra | Trustee | 13 May 2020 |
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Financial history
Financial period end date
Income / Expenditure | 31/03/2020 | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | ||
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Total gross income | £1.05m | £671.23k | £104.59k | £108.01k | £81.22k | |
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Total expenditure | £1.07m | £888.77k | £148.20k | £128.85k | £68.11k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A | |
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Income - Donations and legacies | £78.97k | £156.99k | N/A | N/A | N/A | |
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Income - Other trading activities | £58.75k | £513.43k | N/A | N/A | N/A | |
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Income - Charitable activities | £912.42k | £0 | N/A | N/A | N/A | |
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Income - Endowments | £0 | £0 | N/A | N/A | N/A | |
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Income - Investment | £113 | £808 | N/A | N/A | N/A | |
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Income - Other | £0 | £0 | N/A | N/A | N/A | |
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Income - Legacies | £0 | £0 | N/A | N/A | N/A | |
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Expenditure - Charitable activities | £465.99k | £323.71k | N/A | N/A | N/A | |
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Expenditure - Raising funds | £607.70k | £377.85k | N/A | N/A | N/A | |
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Expenditure - Governance | £46.00k | £13.86k | N/A | N/A | N/A | |
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Expenditure - Grants institution | £99.43k | £205.10k | N/A | N/A | N/A | |
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Expenditure - Investment management | £0 | £0 | N/A | N/A | N/A | |
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Expenditure - Other | £0 | £187.21k | N/A | N/A | N/A |
Accounts and annual returns
Title | Reporting year | Date received | Received | Download |
---|---|---|---|---|
Annual return | 31 March 2024 | 06 January 2025 | On Time | |
Accounts and TAR | 31 March 2024 | 06 January 2025 | On Time | Download Open in new window |
Annual return | 31 March 2023 | 21 December 2023 | On Time | |
Accounts and TAR | 31 March 2023 | 21 December 2023 | On Time | Download Open in new window |
Annual return | 31 March 2022 | 20 December 2022 | On Time | |
Accounts and TAR | 31 March 2022 | 20 December 2022 | On Time | Download Open in new window |
Annual return | 31 March 2021 | 17 December 2021 | On Time | |
Accounts and TAR | 31 March 2021 | 17 December 2021 | On Time | Download Open in new window |
Annual return | 31 March 2020 | 17 November 2020 | On Time | |
Accounts and TAR | 31 March 2020 | 17 November 2020 | On Time | Download Open in new window |
Governing document
It is not the full text of the charity's governing document.
MEMORANDUM AND ARTICLES INCORPORATED 15/03/2011 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 17/03/2011 AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 23/03/2011 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 11/04/2011 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 03/09/2012 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 25 JUL 2016 AS AMENDED ON 28 MAR 2019 AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 05 MAY 2021 as amended on 05 May 2021 as amended on 30 Apr 2025 as amended on 30 Apr 2025
Charitable objects
3.1 The Objects are: 3.1.1 the relief of persons suffering from genetic disorders; 3.1.2 the advancement of medical research into the causes, cure, prevention or relief of such disorders and the publication of the results of that research; 3.1.3 to raise awareness and advance the education of the public on the subject of genetic disorders; 3.1.4 to promote the efficiency and effectiveness of other genetic disorder charities in order to assist them to achieve their charitable purposes; and 3.1.5 such other purposes as are charitable according to the laws of England and Wales for the benefit of the public. 3.2 Nothing in these Articles shall authorise an application of the property of the Charity for purposes which are not charitable in accordance with any statutory provision regarding the meaning of the word charitable or the words charitable purposes in force in any part of the United Kingdom.
Area of benefit
UNITED KINGDOM
Contact information
- Address:
-
c/o Tudor John Accountants Ltd
Nightingale House
46-48 East Street
EPSOM
Surrey
KT17 1HQ
- Phone:
- 0800 987 8987
- Email:
- hello@genepeople.org.uk
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