ICHTHYOSIS SUPPORT GROUP

Charity number: 1142457
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £91,618
Total expenditure: £124,341

People

8 Trustee(s)

5 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

One or more of the employees were formerly trustees

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 17 June 2011: Standard registration
  • 18 August 2011: Funds received from 1084783 ICHTHYOSIS SUPPORT GROUP
Organisation type:
Charitable company
Other names:
  • ISG (Working name)
Company number:
07609904 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
PAUL WILLIAM WHITEHOUSE Chair 19 May 2011
None on record
Tejvir Sohi Trustee 24 March 2024
None on record
Kay Holby Trustee 24 March 2024
None on record
Baljinder Sohi Trustee 10 June 2023
None on record
Lee James Lancashire Trustee 26 February 2017
None on record
Mudassar Ulhaq Trustee 28 October 2014
None on record
RAYMOND JAMES ROWLEY Trustee 19 May 2011
None on record
MARGARET ALDWIN Trustee 19 May 2011
None on record

Financial history

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Financial period end date

Income / Expenditure 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Total gross income £49.88k £393.72k £68.95k £100.06k £91.62k
Total expenditure £50.67k £42.06k £77.92k £73.82k £124.34k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 28 March 2025 On time
Accounts and TAR 30 June 2024 28 March 2025 On time Download Open in new window
Annual return 30 June 2023 24 March 2024 On time
Accounts and TAR 30 June 2023 24 March 2024 On time Download Open in new window
Annual return 30 June 2022 21 April 2023 On time
Accounts and TAR 30 June 2022 21 April 2023 On time Download Open in new window
Annual return 30 June 2021
Accounts and TAR 30 June 2021
Annual return 30 June 2020
Accounts and TAR 30 June 2020
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM MEMORANDUM AND ARTICLES INCORPORATED 19/04/2011

Charitable objects

3.1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OR ICHTHYOSIS AND NAY ASSOCIATED CONDITION IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE; 3.2 TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO ICHTHYOSIS AND ANY ASSOCIATED CONDITION, AND ITS IMPLICATION FOR THE FAMILY; 3.3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ICHTHYOSIS AND ANY ASSOCIATED CONDITION AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH, AND TO SUPPORT ORGANISATIONS WORLDWIDE PROMOTING RESEARCH INTO ICHTHYOSIS; AND 3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

Contact information

Address:
12 Manor Fields
Alrewas
BURTON-ON-TRENT
Staffordshire
DE13 7DA
Phone:
08003689621
Email:
isg@ichthyosis.org.uk
Website:

www.ichthyosis.org.uk Open in new window