NIEMANN-PICK UK

Charity Number: 1144406
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK. The Charity aims to relieve sickness and any distress which may arise therefrom, and to advance the education and awareness of families, professionals and the general public in all matters concerning the disease.

Income and expenditure

Data for financial year ending 30 April 2024

Total income: £373,655
Total expenditure: £456,159

People

11 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 24 October 2011: Standard registration
  • 17 January 2012: Funds received from 1061881 NIEMANN-PICK DISEASE GROUP UK
  • 11 April 2024: Funds received from 1141036 NIEMANN-PICK RESEARCH FOUNDATION
  • 17 April 2024: Funds received from 1156216 THE HOLLIE FOUNDATION
Organisation type:
Charitable company
Other names:
  • NIEMANN-PICK DISEASE GROUP (UK) (Previous name)
Company number:
07775835 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
HELEN CARTER Chair 20 October 2011
None on record
Anthony Mead-Wynne Trustee 14 October 2023
None on record
Professor Frances Mary Platt Trustee 17 June 2023
None on record
Thomas Kirkegaard Jense Trustee 19 November 2022
None on record
Fiona Dunne Trustee 23 November 2019
None on record
JOELLA MELVILLE Trustee 01 May 2016
None on record
JACQUELINE IMRIE Trustee 18 December 2013
MLD SUPPORT ASSOCIATION UK
Received: On time
WILLIAM RALPH HENRY EVANS Trustee 24 October 2011
None on record
DAVID ROBERTS Trustee 20 October 2011
None on record
JANICE BROOKS Trustee 20 October 2011
None on record
WILLIAM OWEN Trustee 20 October 2011
None on record

Financial history

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Financial period end date

Income / Expenditure 30/04/2020 30/04/2021 30/04/2022 30/04/2023 30/04/2024
Total gross income £496.95k £350.92k £416.40k £306.59k £373.66k
Total expenditure £407.76k £331.59k £337.83k £440.37k £456.16k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 April 2024 06 January 2025 On Time
Accounts and TAR 30 April 2024 06 January 2025 On Time Download Open in new window
Annual return 30 April 2023 09 January 2024 On Time
Accounts and TAR 30 April 2023 09 January 2024 On Time Download Open in new window
Annual return 30 April 2022 17 January 2023 On Time
Accounts and TAR 30 April 2022 17 January 2023 On Time Download Open in new window
Annual return 30 April 2021 17 March 2022 17 days late
Accounts and TAR 30 April 2021 17 March 2022 17 days late Download Open in new window
Annual return 30 April 2020 27 October 2020 On Time
Accounts and TAR 30 April 2020 27 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 15 SEP 2011 AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 12 APR 2017

Charitable objects

TO RELIEVE SICKNESS AMONGST FAMILIES AFFLICTED BY NIEMANN-PICK DISEASE AND ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES, INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING THE DISEASE AS THE COMMITTEE MAY DETERMINE ("THE OBJECTS") THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK

Contact information

Address:
SUITE 2
VERMONT HOUSE
CONCORD
WASHINGTON
TYNE & WEAR
Phone:
01914150693
Email:
info@npuk.org
Website:

www.npuk.org Open in new window