ALPHA-1 UK SUPPORT GROUP

Charity number: 1146330
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We provide a support group and website focusing on news, events, information and how better to cope with Alpha-1 aiming towards improving quality of life. Organise social gatherings to educate and unite the Alpha-1 community. Produce, publish and distribute information booklets to advance understanding and awareness. Support research and campaign for better access to treatment.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £38,685
Total expenditure: £13,395

People

5 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Scotland

Governance

Registration history:
  • 12 March 2012: Standard registration
Organisation type:
Other
Other names:
  • Alpha-1 UK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Engaging external speakers at charity events policy and procedures
  • Social media policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MISS KAREN O'HARA Chair 13 June 2013
None on record
Tanya Jones Trustee 30 September 2018
TALATON PARISH HALL
Received: On time
JEMMA LOUISE COAD Trustee 24 March 2016
None on record
DR SANDRA NESTLER-PARR Trustee 31 December 2014
None on record
BEVERLEY BURROUGHS Trustee 22 December 2011
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £18.60k £10.46k £12.04k £19.36k £38.69k
Total expenditure £7.82k £3.25k £4.70k £3.09k £13.40k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 20 December 2024 On time
Accounts and TAR 31 March 2024 20 December 2024 On time Download Open in new window
Annual return 31 March 2023 29 December 2023 On time
Accounts and TAR 31 March 2023 Not required
Annual return 31 March 2022 28 December 2022 On time
Accounts and TAR 31 March 2022 Not required
Annual return 31 March 2021 20 December 2021 On time
Accounts and TAR 31 March 2021 Not required
Annual return 31 March 2020 31 December 2020 On time
Accounts and TAR 31 March 2020 Not required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 16/02/2012 as amended on 24 Sep 2017

Charitable objects

(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS; B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS; C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD; D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH. E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).

Area of benefit

The area the charity can operate in, as set out in its governing document.

UNDEFINED, IN PRINCIPLE NATIONAL

Contact information

Address:
24 Pelham Road
DROITWICH
WR9 8NT
Phone:
00
Email:
info@alpha1.org.uk
Website:

www.alpha1.org.uk Open in new window