MDS UK PATIENT SUPPORT GROUP

Charity number: 1145214
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £133,420
Total expenditure: £226,050

People

9 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland

Governance

Registration history:
  • 22 December 2011: Standard registration
  • 01 August 2014: Funds received from 1122780 MDS UK PATIENT SUPPORT GROUP
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
ANTHONY STEVEN ALLEN Chair 01 October 2021
THE FRIENDS OF SCADBURY PARK
Received: On time
THE ASAMAA CHARITABLE TRUST
Received: On time
Lynda Elizabeth Harris Trustee 06 March 2025
ROYAL SOCIETY FOR THE PREVENTION OF CRUELTY TO ANIMALS BEDFORDSHIRE SOUTH BRANCH
Received: On time
Kes Grant Trustee 06 December 2024
None on record
Pauline Maeve MacRory Trustee 13 April 2024
None on record
Atashia Maria Winnie Gonsalves Trustee 21 March 2024
None on record
Jennifer Susan Goodison Trustee 08 March 2024
None on record
Linda Patricia Holder Trustee 01 October 2021
None on record
Claudia Richards Trustee 21 July 2017
None on record
Russell Cook Trustee 23 January 2015
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £93.98k £180.51k £420.58k £402.05k £133.42k
Total expenditure £309.34k £156.00k £107.10k £204.12k £226.05k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 17 December 2024 On Time
Accounts and TAR 31 March 2024 17 December 2024 On Time Download Open in new window
Annual return 31 March 2023 23 October 2023 On Time
Accounts and TAR 31 March 2023 23 October 2023 On Time Download Open in new window
Annual return 31 March 2022 23 December 2022 On Time
Accounts and TAR 31 March 2022 23 December 2022 On Time Download Open in new window
Annual return 31 March 2021 03 December 2021 On Time
Accounts and TAR 31 March 2021 03 December 2021 On Time Download Open in new window
Annual return 31 March 2020 13 November 2020 On Time
Accounts and TAR 31 March 2020 13 November 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - ASSOCIATION CONVERSION CONVERSION 05 JAN 2021 as amended on 12 Dec 2022 as amended on 12 Dec 2022 as amended on 17 Dec 2024

Charitable objects

1) TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE. 2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS. 3) TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

Contact information

Address:
Unit FT.B12
Fuel Tank
8-12 Creekside
London
SE8 3DX
Phone:
02077337558
Email:
info@mdspatientsupport.org.uk
Website:

www.mdspatientsupport.org.uk Open in new window