FOP FRIENDS

Charity Number: 1147704
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.

Income and expenditure

Data for financial year ending 01 March 2024

Total income: £83,617
Total expenditure: £58,322

People

7 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Provides Other Finance
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • United States

Governance

Registration history:
  • 15 June 2012: Standard registration
Organisation type:
Trust
Other names:
  • FOP ACTION (Working name)
  • FOP FRIENDS OF OLIVER (Working name)
  • FOP ACTION (Previous name)
  • FOP FRIENDS OF OLIVER (Previous name)
  • FRIENDS OF OLIVER (Previous name)
  • FRIENDS OF OLIVER (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MR CHRIS BEDFORD-GAY Chair 13 June 2012
Manchester Round Table
Received: On time
Andrew Rankin Trustee 20 February 2024
None on record
Helen Bedford-Gay Trustee 26 January 2015
None on record
JOHN LEAVER Trustee 15 April 2013
None on record
FIONA WHITE Trustee 12 February 2013
None on record
RACHEL ALMEIDA Trustee 13 June 2012
None on record
ALISON ACOSTA BEDFORD Trustee 13 June 2012
None on record

Financial history

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Financial period end date

Income / Expenditure 01/03/2020 01/03/2021 01/03/2022 01/03/2023 01/03/2024
Total gross income £141.34k £179.76k £245.25k £231.41k £83.62k
Total expenditure £116.47k £136.21k £162.75k £141.36k £58.32k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 01 March 2024 09 December 2024 On Time
Accounts and TAR 01 March 2024 09 December 2024 On Time Download Open in new window
Annual return 01 March 2023 01 December 2023 On Time
Accounts and TAR 01 March 2023 01 December 2023 On Time Download Open in new window
Annual return 01 March 2022 16 December 2022 On Time
Accounts and TAR 01 March 2022 16 December 2022 On Time Download Open in new window
Annual return 01 March 2021 20 December 2021 On Time
Accounts and TAR 01 March 2021 20 December 2021 On Time Download Open in new window
Annual return 01 March 2020 10 December 2020 On Time
Accounts and TAR 01 March 2020 10 December 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 01 MAR 2012

Charitable objects

THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES. TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS. TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS. TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.

Contact information

Address:
1 Cumberland Road
Sale
M33 3FR
Phone:
01612820441
Email:
info@fopfriends.com
Website:

www.fopfriends.com Open in new window