MLD SUPPORT ASSOCIATION UK

Charity number: 1150542
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.

Income and expenditure

Data for financial year ending 24 July 2024

Total income: £35,495
Total expenditure: £25,681

People

6 Trustee(s)

6 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 21 January 2013: CIO registration
  • 13 October 2021: Funds received from 1167544 BUTTERFLY HUGS
Organisation type:
CIO
Other names:
  • MLD SUPPORT UK (Working name)
  • MLD SUPPORT ASSOCIATION UK1 (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Daniel Erskine Trustee 23 March 2024
None on record
Elizabeth Davenport Trustee 19 November 2022
None on record
Nicola Jane Elson Trustee 24 October 2018
None on record
JACQUELINE IMRIE Trustee 30 September 2015
NIEMANN-PICK UK
Received: On time
TWILA D'CRUZ Trustee 28 December 2012
None on record
VIVIENNE ELEANOR CLARK Trustee 28 December 2012
None on record

Financial history

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Financial period end date

Income / Expenditure 24/07/2020 24/07/2021 24/07/2022 24/07/2023 24/07/2024
Total gross income £8.07k £9.25k £26.57k £32.27k £35.49k
Total expenditure £14.54k £13.41k £16.68k £37.02k £25.68k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 24 July 2024 21 May 2025 On Time
Accounts and TAR 24 July 2024 21 May 2025 On Time Download Open in new window
Annual return 24 July 2023 01 May 2024 On Time
Accounts and TAR 24 July 2023 01 May 2024 On Time Download Open in new window
Annual return 24 July 2022 18 April 2023 On Time
Accounts and TAR 24 July 2022 18 April 2023 On Time Download Open in new window
Annual return 24 July 2021 05 May 2022 On Time
Accounts and TAR 24 July 2021 05 May 2022 On Time Download Open in new window
Annual return 24 July 2020 21 April 2021 On Time
Accounts and TAR 24 July 2020 21 April 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION REGISTERED ON 21/01/2013

Charitable objects

1.TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF THE DIAGNOSIS, PROGRESSION, AND TREATMENT FOR ALL FORMS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.). 2. TO RELIEVE THE MENTAL AND PHYSICAL SICKNESS OF PERSONS RESIDENT IN THE UNITED KINGDOM, SUFFERING FROM BEREAVEMENT OR LOSS OF A FAMILY MEMBER THROUGH METACHROMATIC LEUKODYSTROPHY (M.L.D.) BY THE PROVISION OF COUNSELLING AND SUPPORT FOR SUCH PERSONS. 3. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE TO THEIR FAMILIES; AND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE TO BONA FIDE CLINICIANS AND RESEARCH BODIES WHO ARE SEEKING THERAPEUTIC TREATMENT FOR THIS CONDITION.

Area of benefit

The area the charity can operate in, as set out in its governing document.

ENGLAND AND WALES

Contact information

Address:
Need More Time Ltd
35 Marine Terrace
MARGATE
Kent
CT9 1XJ
Phone:
01227372424
Email:
admin@MLDSupportUK.org.uk
Website:

MLDSupportUK.org.uk