WOLFRAM SYNDROME UK

Charity number: 1152445
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Income and expenditure

Data for financial year ending 29 February 2024

Total income: £136,399
Total expenditure: £113,865

People

5 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • Other Charitable Purposes
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Scotland

Governance

Registration history:
  • 17 June 2013: CIO registration
Organisation type:
CIO
Other names:
  • WSUK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
John Isherwood Chair 22 February 2019
None on record
Abby Gardner Trustee 19 April 2020
None on record
ALAN NYE Trustee 02 April 2013
None on record
PROF TIM BARRETT Trustee 02 April 2013
None on record
PAUL LYNCH Trustee 02 April 2013
None on record

Financial history

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Financial period end date

Income / Expenditure 29/02/2020 28/02/2021 28/02/2022 28/02/2023 29/02/2024
Total gross income £61.19k £38.25k £43.16k £108.12k £136.40k
Total expenditure £45.49k £46.08k £48.20k £64.91k £113.87k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A £9.95k N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 29 February 2024 22 November 2024 On time
Accounts and TAR 29 February 2024 22 November 2024 On time Download Open in new window
Annual return 28 February 2023 20 November 2023 On time
Accounts and TAR 28 February 2023 20 November 2023 On time Download Open in new window
Annual return 28 February 2022 06 September 2022 On time
Accounts and TAR 28 February 2022 06 September 2022 On time Download Open in new window
Annual return 28 February 2021 19 November 2021 On time
Accounts and TAR 28 February 2021 19 November 2021 On time Download Open in new window
Annual return 29 February 2020 02 December 2020 On time
Accounts and TAR 29 February 2020 02 December 2020 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Foundation Registered 17 Jun 2013 as amended on 04 Feb 2020

Charitable objects

1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF WOLFRAM SYNDROME AND RELATED SYNDROMES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT,EDUCATION, FINANCIAL ASSISTANCE WHERE POSSIBLE AND PRACTICAL ADVICE.(2)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AS WELL AS THE MEDICAL PROFESSION IN ALL AREAS RELATING TO WOLFRAM SYNDROME AND RELATED SYNDROMES

Contact information

Address:
9 Church Way
Worthing
BN13 1HD
Phone:
01903211358
Email:
admin@wolframsyndrome.co.uk
Website:

www.wolframsyndrome.co.uk Open in new window