ALPORT UK
Charity Number: 1154774
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
Working in partnership with patients and the scientific community we will: - Facilitate a support network for individuals and families - Be a conduit for high quality, accessible information - Raise the profile of Alport Syndrome - Contribute to the international research agenda - Collaborate on the development of a UK patient registry and alliance of international patient registries.
Income and expenditure
Data for financial year ending 01 August 2024
Total income: £154,267
Total expenditure: £155,496
People
7 Trustee(s)
15 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
What the charity does:
- The Advancement Of Health Or Saving Of Lives
Who the charity helps:
- Other Defined Groups
How the charity helps:
- Provides Advocacy/advice/information
Where the charity operates:
- Throughout England And Wales
Governance
Registration history:
- 27 November 2013: CIO registration
Organisation type:
CIO
Other names:
No other names
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
7 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Professor Frances Anne Flinter | Chair | 11 April 2025 |
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| Amanda McLean | Trustee | 09 May 2025 |
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| Alice Turner | Trustee | 06 May 2025 |
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| Professor Daniel Gale | Trustee | 29 April 2025 |
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| Professor Neil Turner | Trustee | 29 April 2025 |
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| Professor Rachel Lennon | Trustee | 11 April 2025 |
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| SUSIE GEAR | Trustee | 28 October 2013 |
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Financial history
Financial period end date
| Income / Expenditure | 01/08/2020 | 01/08/2021 | 01/08/2022 | 01/08/2023 | 01/08/2024 | ||
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Total gross income | £60.07k | £60.07k | £37.44k | £92.19k | £154.27k | |
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Total expenditure | £28.33k | £28.33k | £47.76k | £93.86k | £155.50k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | £19.24k | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 01 August 2024 | 24 December 2024 | On Time | |
| Accounts and TAR | 01 August 2024 | 24 December 2024 | On Time | Download Open in new window |
| Annual return | 01 August 2023 | 11 September 2024 | 102 days late | |
| Accounts and TAR | 01 August 2023 | 11 September 2024 | 102 days late | Download Open in new window |
| Annual return | 01 August 2022 | 17 October 2022 | On Time | |
| Accounts and TAR | 01 August 2022 | 17 October 2022 | On Time | Download Open in new window |
| Annual return | 01 August 2021 | 21 August 2021 | On Time | |
| Accounts and TAR | 01 August 2021 | 21 August 2021 | On Time | Download Open in new window |
| Annual return | 01 August 2020 | 21 August 2021 | 81 days late | |
| Accounts and TAR | 01 August 2020 | 21 August 2021 | 81 days late | Download Open in new window |