LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY

Charity number: 1157206
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.

Income and expenditure

Data for financial year ending 31 May 2024

Total income: £11,062
Total expenditure: £2,916

People

3 Trustee(s)

1 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Ireland
  • Isle Of Man
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 28 May 2014: CIO registration
Organisation type:
CIO
Other names:
  • LHON SOCIETY (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Diane Louise Watson Trustee 03 April 2024
None on record
Charlotte Isabella McMillan Trustee 25 September 2021
None on record
RUSSELL GEORGE WINSTON WHEELER Trustee 25 May 2014
None on record

Financial history

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Financial period end date

Income / Expenditure 31/05/2020 31/05/2021 31/05/2022 31/05/2023 31/05/2024
Total gross income £8.50k £1.11k £21.45k £4.25k £11.06k
Total expenditure £170 £123 £152 £13.83k £2.92k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 May 2024 25 March 2025 On Time
Accounts and TAR 31 May 2024 25 March 2025 On Time Download Open in new window
Annual return 31 May 2023 29 March 2024 On Time
Accounts and TAR 31 May 2023 29 March 2024 On Time Download Open in new window
Annual return 31 May 2022 28 March 2023 On Time
Accounts and TAR 31 May 2022 28 March 2023 On Time Download Open in new window
Annual return 31 May 2021 19 March 2022 On Time
Accounts and TAR 31 May 2021 19 March 2022 On Time Download Open in new window
Annual return 31 May 2020 30 March 2021 On Time
Accounts and TAR 31 May 2020 30 March 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - ASSOCIATION REGISTERED 28 MAY 2014 AMENDED ON 07 JAN 2017

Charitable objects

1. TO RELIEVE THE CHARITABLE NEEDS OF PEOPLE AFFECTED BY LEBER’S HEREDITARY OPTIC NEUROPATHY (“LHON)”, THEIR FAMILIES AND CARES BY THE PROVISION OF SUPPORT, ADVOCACY, ADVICE AND INFORMATION. 2. TO CARRY OUT, OR TO PROVIDE FUNDS TO SUPPORT RESEARCH IN ALL ASPECTS OF LHON, ITS CAUSES, TREATMENT AND CURE AND PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.

Contact information

Address:
The Hayloft
Pury Hill Business Park
Alderton
Northamptonshire
NN12 7LS
Phone:
01702200285
Email:
Info@LHONSociety.org
Website:

http://www.LHONSociety.org/ Open in new window