PHELAN-MCDERMID SYNDROME FOUNDATION UK

Charity number: 1157423
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation

Income and expenditure

Data for financial year ending 30 September 2023

Total income: £89,017
Total expenditure: £60,857

People

4 Trustee(s)

12 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Camden
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 10 June 2014: CIO registration
Organisation type:
CIO
Other names:
  • PMSF UK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Internal charity financial controls policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
ALISON JANE TURNER Chair 11 November 2017
None on record
Tanith Sherwood Trustee 13 March 2024
None on record
Natalie James Trustee 17 November 2018
None on record
LYNDA WHITE Trustee 12 November 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 30/09/2019 30/09/2020 30/09/2021 30/09/2022 30/09/2023
Total gross income £33.36k £41.14k £43.75k £94.54k £89.02k
Total expenditure £51.78k £35.81k £33.35k £60.56k £60.86k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 September 2023 28 July 2024 On Time
Accounts and TAR 30 September 2023 28 July 2024 On Time
Annual return 30 September 2022 10 June 2023 On Time
Accounts and TAR 30 September 2022 10 June 2023 On Time
Annual return 30 September 2021 18 June 2022 On Time
Accounts and TAR 30 September 2021 18 June 2022 On Time
Annual return 30 September 2020 18 June 2021 On Time
Accounts and TAR 30 September 2020 18 June 2021 On Time
Annual return 30 September 2019 05 July 2020 On Time
Accounts and TAR 30 September 2019 05 July 2020 On Time
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Foundation Registered 10 Jun 2014 as amended on 10 Jan 2024

Charitable objects

THE OBJECT OF THE CIO IS: THE RELIEF OF NEEDS OF PEOPLE WHO HAVE BEEN DIAGNOSED WITH PHELAN-MCDERMID SYNDROME (CHROMOSOME 22Q13.3 DELETION) AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, FAMILY DAYS, INFORMATION, FINANCIAL GRANTS FOR DIFFERENT THERAPIES FOR THE PERSON WITH THE SYNDROME AND RESEARCH ENDORSED BY THE INTERNATIONAL PHELAN-MCDERMID SYNDROME FOUNDATION.

Contact information

Address:
99 HIGHGATE WEST HILL
LONDON
N6 6NR
Phone:
02074194554
Email:
info@pmsf.org.uk
Website:

www.pmsf.org.uk Open in new window