VHL UK/IRELAND

Charity number: 1160381
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland. The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £38,000
Total expenditure: £1,900

People

13 Trustee(s)

20 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 09 February 2015: Standard registration
Organisation type:
Other
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

13 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
GRAHAM JOHN LOVITT Chair 01 March 2013
None on record
Nancy Molyneaux-Finley Trustee 11 March 2024
None on record
Francesca Goddard Trustee 11 June 2020
None on record
Tantara Fox-Stillwell Trustee 11 June 2020
None on record
Kathryn Chapman Trustee 11 June 2020
None on record
Kim Lara Vaughan Trustee 11 June 2020
None on record
ELLEN WENTWORTH Trustee 23 May 2016
None on record
John Allan Hepworth Trustee 22 May 2016
None on record
Dr Antony Richard Horton Ph D Trustee 07 May 2015
None on record
JANICE HEPWORTH Trustee 07 May 2015
None on record
GLORIA FLORENCE PROBY Trustee 11 November 2014
None on record
ROXANNE MICA DAPHNE BONIN BA HONS Trustee 11 November 2014
None on record
NAT MASON Trustee 01 March 2013
FRIENDS OF CROWHURST SCHOOL
Recently registered

Financial history

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Financial period end date

Income / Expenditure 05/04/2020 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £29.93k £34.82k £18.13k £8.11k £38.00k
Total expenditure £41.44k £60.62k £801 £21.51k £1.90k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 05 February 2025 On time
Accounts and TAR 05 April 2024 05 February 2025 On time Download Open in new window
Annual return 05 April 2023 04 February 2024 On time
Accounts and TAR 05 April 2023 Not required
Annual return 05 April 2022 05 February 2023 On time
Accounts and TAR 05 April 2022 Not required
Annual return 05 April 2021 02 February 2022 On time
Accounts and TAR 05 April 2021 02 February 2022 On time Download Open in new window
Annual return 05 April 2020 04 February 2021 On time
Accounts and TAR 05 April 2020 04 February 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED 05/04/2013 AS AMENDED ON 06/02/2015 AS AMENDED ON 08 APR 2016

Charitable objects

TO RELIEVE THE CHARITABLE NEEDS OF PERSONS WHO HAVE VON HIPPEL-LINDAU SYNDROME (VHL) AND SIMILAR GENETIC CONDITIONS SUCH AS HEREDITARY LEIOMYOMATOSIS AND RENAL CELL CANCER (HLRCC) AND BIRT-HOGG-DUBE SYNDROME (BHD) AND THEIR FAMILIES AND CARERS IN THE UK AND IRELAND FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY BY 1)PROVIDING SUPPORT AND ADVICE REGARDING THEIR GENETIC CONDITIONS, 2)PROVIDING FUNDS FOR RESEARCH INTO THE GENETIC CONDITIONS AND FOR EQUIPMENT TO ASSIST WITH SUCH RESEARCH, 3)TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THE GENETIC CONDITIONS.

Contact information

Address:
47 Tiln Lane
RETFORD
DN22 6SN
Phone:
07762525561
Email:
uk@vhl-uk-ireland.org
Website:

http://vhl-uk-ireland.org/ Open in new window