Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CONSTITUTION ADOPTED 05/04/2013
AS AMENDED ON 06/02/2015
AS AMENDED ON 08 APR 2016
Charitable objects
TO RELIEVE THE CHARITABLE NEEDS OF PERSONS WHO HAVE VON HIPPEL-LINDAU SYNDROME (VHL) AND SIMILAR GENETIC CONDITIONS SUCH AS HEREDITARY LEIOMYOMATOSIS AND RENAL CELL CANCER (HLRCC) AND BIRT-HOGG-DUBE SYNDROME (BHD) AND THEIR FAMILIES AND CARERS IN THE UK AND IRELAND FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY BY
1)PROVIDING SUPPORT AND ADVICE REGARDING THEIR GENETIC CONDITIONS,
2)PROVIDING FUNDS FOR RESEARCH INTO THE GENETIC CONDITIONS AND FOR EQUIPMENT TO ASSIST WITH SUCH RESEARCH,
3)TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THE GENETIC CONDITIONS.
