PNH SUPPORT

Charity Number: 1161518
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

PNH Support provides support, information and (non medical) advice to the PNH community in England, Wales and Northern Ireland as well as advocating on their behalf.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £13,090
Total expenditure: £1,620

People

4 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland

Governance

Registration history:
  • 01 May 2015: CIO registration
Organisation type:
CIO
Other names:
  • PNH SUPPORT ENGLAND AND WALES (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
MARIA MEREDITH PIGGIN Chair 01 May 2015
None on record
Victoria Solovieva Trustee 07 March 2025
None on record
Virginia Bertelli Trustee 05 November 2024
None on record
Alexandra Naylor Trustee 27 February 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £1.11k £3.00k £4.64k £11.73k £13.09k
Total expenditure £2.46k £1.02k £1.28k £1.45k £1.62k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 20 December 2024 On Time
Accounts and TAR 31 March 2024 20 December 2024 On Time Download Open in new window
Annual return 31 March 2023 20 January 2024 On Time
Accounts and TAR 31 March 2023 20 January 2024 On Time Download Open in new window
Annual return 31 March 2022 10 December 2022 On Time
Accounts and TAR 31 March 2022 10 December 2022 On Time Download Open in new window
Annual return 31 March 2021 14 December 2021 On Time
Accounts and TAR 31 March 2021 14 December 2021 On Time Download Open in new window
Annual return 31 March 2020 11 December 2020 On Time
Accounts and TAR 31 March 2020 11 December 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Association Registered 01 May 2015 as amended on 02 Jun 2020

Charitable objects

(1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA ("PNH") WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE; (2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.

Contact information

Address:
4 BUCKLAND ROAD
LONDON
E10 6QS
Phone:
07810352555
Email:
contact@pnhuk.org
Website:

www.pnhuk.org Open in new window