Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CIO - Foundation Registered 05 Nov 2015
Charitable objects
TO PROVIDE RELIEF TO PATIENTS AND FAMILIES IN THE UK (INCLUDING SCOTLAND AND NORTHERN IRELAND) WHO ARE AFFECTED BY SHWACHMAN-DIAMOND SYNDROME (SDS) IN PARTICULAR BUT NOT EXCLUSIVELY BY:
? PROMOTING ACCESS TO HEALTH AND EDUCATIONAL SERVICES FOR AFFECTED PATIENTS THROUGHOUT THE UK,
? SUPPORTING RESEARCH INTO THE PATHOPHYSIOLOGY OF SDS AND ITS CURRENT AND POTENTIAL TREATMENT AND THE PUBLIC DISSEMINATION OF THE USEFUL RESULTS THEREOF, AND
? PROVIDING AND ENCOURAGING OTHERS TO PROVIDE EDUCATIONAL RESOURCES AND ACTIVITIES ABOUT SDS FOR THE BENEFIT OF FAMILIES, PROFESSIONALS AND THE PUBLIC, BOTH NATIONALLY AND INTERNATIONALLY.
