Action FCS

Charity number: 1165873
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £339
Total expenditure: £787

People

4 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 04 March 2016: CIO registration
Organisation type:
CIO
Other names:
  • LPLD ALLIANCE (Previous name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
JILL PRAWER Chair 22 February 2016
None on record
Finion Nicholas Patrick Day-Lewis Trustee 01 November 2021
None on record
Helen Olufunke Aderin Trustee 06 March 2018
None on record
Mrs Pat Wade Trustee 04 December 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £3.94k £2.96k £1.86k £281 £339
Total expenditure £4.60k £2.15k £3.70k £398 £787
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 23 September 2024 On Time
Accounts and TAR 31 December 2023 25 September 2024 On Time Download Open in new window
Annual return 31 December 2022 19 February 2024 111 days late
Accounts and TAR 31 December 2022 19 February 2024 111 days late Download Open in new window
Annual return 31 December 2021 03 October 2022 On Time
Accounts and TAR 31 December 2021 03 October 2022 On Time Download Open in new window
Annual return 31 December 2020 11 October 2021 On Time
Accounts and TAR 31 December 2020 11 October 2021 On Time Download Open in new window
Annual return 31 December 2019 29 October 2020 On Time
Accounts and TAR 31 December 2019 29 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION REGISTERED 04 MAR 2016 AMENDED ON 17 OCT 2017 as amended on 03 Sep 2020

Charitable objects

THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT GOOD HEALTH OF PERSONS SUFFERING FROM FAMILIAL LIPOPROTEIN LIPASE DEFICIENCY (LPLD) AND RELATED CONDITIONS BY: 1. RAISING AWARENESS OF LPLD AND RELATED CONDITIONS; 2. EDUCATING PATIENTS, MEDICAL PERSONNEL AND THE PUBLIC IN GENERAL ABOUT LPLD; 3. SUPPORTING PEOPLE WITH LPLD AND THOSE AFFECTED BY IT TO LIVE A FULL, HEALTHY AND INTEGRATED LIFE; 4. ADVOCATING FOR ACCESS TO EXCELLENT CARE AND NEW MEDICINES FOR ALL PATIENTS WITH LPLD. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

Contact information

Address:
36 GASKELL STREET
LONDON
SW4 6NS
Phone:
07920715366
Email:
info@actionfcs.org
Website:

www.actionfcs.org Open in new window