ZELLWEGER UK

Charity number: 1166389
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To promote & protect the physical & mental health of sufferers of Peroxisomal Biogenesis Disorders & their families in the UK and Ireland by the provision of grants and/or equipment, support & practical advice. To advance the education of the public by supporting research into Peroxisomal Biogenesis Disorders & disseminating the useful results for the public benefit.

Income and expenditure

Data for financial year ending 31 August 2024

Total income: £4,999
Total expenditure: £4,910

People

5 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Other Finance
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Birmingham City
  • Devon
  • Hampshire
  • Somerset
  • Wiltshire
  • Throughout London

Governance

Registration history:
  • 06 April 2016: CIO registration
Organisation type:
CIO
Other names:
  • ZUK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
TASH ANDERSON-HUNT Chair 06 April 2016
None on record
Rudi Evans Trustee 24 October 2020
None on record
ALEXANDRA McConville Trustee 26 July 2018
None on record
KERRY HUGHES Trustee 13 April 2016
None on record
CARLY ANNE BROWN Trustee 06 April 2016
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/08/2020 31/08/2021 31/08/2022 31/08/2023 31/08/2024
Total gross income £21.35k £20.05k £22.58k £15.87k £5.00k
Total expenditure £23.11k £2.52k £4.80k £19.45k £4.91k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 August 2024 11 April 2025 On Time
Accounts and TAR 31 August 2024 11 April 2025 On Time Download Open in new window
Annual return 31 August 2023 14 March 2024 On Time
Accounts and TAR 31 August 2023 14 March 2024 On Time Download Open in new window
Annual return 31 August 2022 07 June 2023 On Time
Accounts and TAR 31 August 2022 07 June 2023 On Time Download Open in new window
Annual return 31 August 2021 02 March 2022 On Time
Accounts and TAR 31 August 2021 02 March 2022 On Time Download Open in new window
Annual return 31 August 2020 05 January 2021 On Time
Accounts and TAR 31 August 2020 05 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Foundation Registered 06 Apr 2016

Charitable objects

1. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF PEROXISOMAL BIOGENESIS DISORDER AND THEIR FAMILIES IN THE UK BY THE PROVISION OF GRANTS AND/OR EQUIPMENT, SUPPORT AND PRACTICAL ADVICE. 2. TO ADVANCE THE EDUCATION OF THE PUBLIC BY SUPPORTING RESEARCH INTO PEROXISOMAL BIOGENESIS DISORDER AND DISSEMINATING THE USEFUL RESULTS FOR THE PUBLIC BENEFIT.

Contact information

Address:
7 Wildmoor Walk
HAVANT
PO9 5QY
Phone:
07875667085
Email:
Admin@zellweger.org.uk
Website:

http://zellweger.org.uk Open in new window