PITT HOPKINS UK

Charity number: 1167153
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £25,155
Total expenditure: £2,159

People

6 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Disability
Who the charity helps:
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 17 May 2016: CIO registration
Organisation type:
CIO
Other names:
  • PITT HOPKINS SYNDROME UK (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
SUE ROUTLEDGE Chair 16 May 2016
None on record
Mark Lewis Haywood Trustee 15 January 2024
None on record
Graham John Fiveash Trustee 07 November 2022
None on record
Melissa-Jane Stewart Trustee 12 July 2021
None on record
LEANNE GROVES Trustee 17 May 2016
None on record
BRIAN ROUTLEDGE Trustee 16 May 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £29.62k £19.01k £34.38k £36.09k £25.16k
Total expenditure £2.51k £69.50k £10.68k £8.01k £2.16k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 09 October 2024 On time
Accounts and TAR 31 December 2023 09 October 2024 On time Download Open in new window
Annual return 31 December 2022 26 October 2023 On time
Accounts and TAR 31 December 2022 26 October 2023 On time Download Open in new window
Annual return 31 December 2021 03 October 2022 On time
Accounts and TAR 31 December 2021 03 October 2022 On time Download Open in new window
Annual return 31 December 2020 02 October 2021 On time
Accounts and TAR 31 December 2020 02 October 2021 On time Download Open in new window
Annual return 31 December 2019 19 September 2020 On time
Accounts and TAR 31 December 2019 19 September 2020 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Foundation Registered 17 May 2016

Charitable objects

TO RELIEVE THE NEEDS OF CHILDREN AND YOUNG PEOPLE DIAGNOSED WITH PITT HOPKINS SYNDROME,THEIR FAMILIES AND CARERS BY: 1.INCREASING THE PROFILE OF PITT-HOPKINS SYNDROME FOR PUBLIC BENEFIT BY RAISING AWARENESS OF PITT-HOPKINS SYNDROME. 2.SUPPORTING FAMILIES HAVING A DIAGNOSIS OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION AND FUNDING TO FACILITATE OPPORTUNITIES AND MEANS TO COMMUNICATE WITH EACH OTHER AND TO EXCHANGE EXPERIENCES AND ADVICE. 3.PROMOTING UNDERSTANDING OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION TO MEDICAL AND SOCIAL PROFESSIONALS. 4.SUPPORTING RESEARCH INTO PITT-HOPKINS SYNDROME, IN PARTICULAR NATURAL HISTORY STUDIES AND BREATHING ANOMALIES AND THE DISSEMINATION OF THE USEFUL RESULTS OF THAT RESEARCH.

Contact information

Address:
4 Forest Oaks
Horsham
West Sussex
RH13 6RX
Phone:
02032392123
Email:
sue@pitthopkins.org.uk
Website:

www.pitthopkins.org.uk Open in new window