LAM ACTION

Charity number: 1167610
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £102,582
Total expenditure: £63,955

People

14 Trustee(s)

11 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 10 June 2016: CIO registration
  • 20 April 2017: Funds received from 1096637 LAM ACTION
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

14 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
LEANNE MICHELLE LILLYWHITE-SUTTON Chair 13 October 2014
None on record
Clare Elizabeth Lyon Trustee 08 February 2025
None on record
Adam James Davidson Trustee 01 November 2023
None on record
Tess Hill Trustee 01 July 2022
None on record
Harriet Davidson Trustee 02 April 2022
None on record
Joanne Patra Pisani Trustee 04 November 2019
BEACON: FOR RARE DISEASES LTD
Received: On time
LIFEARC
Received: On time
Ilona Gail Leighton-Goodall Trustee 26 November 2018
None on record
Alison Hilary Bronwen Merritt-Collins Trustee 26 November 2018
None on record
PROFESSOR SIMON RICHARD JOHNSON Trustee 10 June 2016
None on record
JOHN DAVID WOOD Trustee 10 June 2016
None on record
SARAH LOUISE SHARPLES Trustee 10 June 2016
None on record
KELLY VANCE Trustee 10 June 2016
None on record
DAVID ARTHUR MERCER Trustee 10 June 2016
None on record
GILLIAN ELIZABETH HOLLIS Trustee 10 June 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £53.10k £88.77k £44.65k £65.46k £102.58k
Total expenditure £105.29k £64.93k £64.88k £69.97k £63.96k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 30 October 2024 On Time
Accounts and TAR 31 December 2023 30 October 2024 On Time Download Open in new window
Annual return 31 December 2022 12 December 2023 42 days late
Accounts and TAR 31 December 2022 12 December 2023 42 days late Download Open in new window
Annual return 31 December 2021 31 October 2022 On Time
Accounts and TAR 31 December 2021 31 October 2022 On Time Download Open in new window
Annual return 31 December 2020 28 October 2021 On Time
Accounts and TAR 31 December 2020 28 October 2021 On Time Download Open in new window
Annual return 31 December 2019 30 October 2020 On Time
Accounts and TAR 31 December 2019 30 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023

Charitable objects

1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.

Contact information

Address:
6 Brun Crescent
CLITHEROE
Lancashire
BB7 2FJ
Phone:
07710 527636
Email:
finance@office.lamaction.org
Website:

http://lamaction.org Open in new window