LAM ACTION

Charity overview
Activities - how the charity spends its money
LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.
Income and expenditure
Data for financial year ending 31 December 2023
People

14 Trustee(s)
11 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
Trading
Trustee payments
What, who, how, where
- The Advancement Of Health Or Saving Of Lives
- Other Defined Groups
- Provides Services
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Throughout England And Wales
- Northern Ireland
- Scotland
Governance
- 10 June 2016: CIO registration
- 20 April 2017: Funds received from 1096637 LAM ACTION
No other names
- Bullying and harassment policy and procedures
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Investing charity funds policy and procedures
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
14 Trustee(s)
Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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LEANNE MICHELLE LILLYWHITE-SUTTON | Chair | 13 October 2014 |
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Clare Elizabeth Lyon | Trustee | 08 February 2025 |
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Adam James Davidson | Trustee | 01 November 2023 |
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Tess Hill | Trustee | 01 July 2022 |
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Harriet Davidson | Trustee | 02 April 2022 |
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Joanne Patra Pisani | Trustee | 04 November 2019 |
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Ilona Gail Leighton-Goodall | Trustee | 26 November 2018 |
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Alison Hilary Bronwen Merritt-Collins | Trustee | 26 November 2018 |
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PROFESSOR SIMON RICHARD JOHNSON | Trustee | 10 June 2016 |
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JOHN DAVID WOOD | Trustee | 10 June 2016 |
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SARAH LOUISE SHARPLES | Trustee | 10 June 2016 |
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KELLY VANCE | Trustee | 10 June 2016 |
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DAVID ARTHUR MERCER | Trustee | 10 June 2016 |
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GILLIAN ELIZABETH HOLLIS | Trustee | 10 June 2016 |
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Financial history
Financial period end date
Income / Expenditure | 31/12/2019 | 31/12/2020 | 31/12/2021 | 31/12/2022 | 31/12/2023 | ||
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Total gross income | £53.10k | £88.77k | £44.65k | £65.46k | £102.58k | |
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Total expenditure | £105.29k | £64.93k | £64.88k | £69.97k | £63.96k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A |
Accounts and annual returns
Title | Reporting year | Date received | Received | Download |
---|---|---|---|---|
Annual return | 31 December 2023 | 30 October 2024 | On Time | |
Accounts and TAR | 31 December 2023 | 30 October 2024 | On Time | Download Open in new window |
Annual return | 31 December 2022 | 12 December 2023 | 42 days late | |
Accounts and TAR | 31 December 2022 | 12 December 2023 | 42 days late | Download Open in new window |
Annual return | 31 December 2021 | 31 October 2022 | On Time | |
Accounts and TAR | 31 December 2021 | 31 October 2022 | On Time | Download Open in new window |
Annual return | 31 December 2020 | 28 October 2021 | On Time | |
Accounts and TAR | 31 December 2020 | 28 October 2021 | On Time | Download Open in new window |
Annual return | 31 December 2019 | 30 October 2020 | On Time | |
Accounts and TAR | 31 December 2019 | 30 October 2020 | On Time | Download Open in new window |
Governing document
It is not the full text of the charity's governing document.
CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023
Charitable objects
1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.
Contact information
- Address:
-
6 Brun Crescent
CLITHEROE
Lancashire
BB7 2FJ
- Phone:
- 07710 527636
- Email:
- finance@office.lamaction.org
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