Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
CIO - Association Registered 10 Jun 2016 as amended on 23 Jun 2021 as amended on 21 Jun 2023
Charitable objects
1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.
