NORRIE DISEASE FOUNDATION

Charity number: 1171274
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Reference no: 061000035663 The activities of the CIO are to relieve the needs of those affected by Norrie disease by promoting greater understanding of the causes, symptoms and treatment of Norrie disease in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £30,562
Total expenditure: £5,637

People

5 Trustee(s)

6 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
Who the charity helps:
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 24 January 2017: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Financial reserves policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
WENDY JOAN HORROBIN Chair 24 January 2017
None on record
Anthony Reyers Trustee 27 January 2021
None on record
Kelly Robinson Trustee 22 March 2018
None on record
THERESA PEACOCK Trustee 24 January 2017
None on record
KELLY LOUISE LEGGETT Trustee 24 January 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £100.78k £62.80k £71.30k £47.57k £30.56k
Total expenditure £7.13k £66.62k £1.82k £28.44k £5.64k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 05 September 2024 On Time
Accounts and TAR 31 December 2023 05 September 2024 On Time Download Open in new window
Annual return 31 December 2022 30 October 2023 On Time
Accounts and TAR 31 December 2022 30 October 2023 On Time Download Open in new window
Annual return 31 December 2021 04 October 2022 On Time
Accounts and TAR 31 December 2021 04 October 2022 On Time Download Open in new window
Annual return 31 December 2020 08 September 2021 On Time
Accounts and TAR 31 December 2020 28 October 2021 On Time Download Open in new window
Annual return 31 December 2019 07 October 2020 On Time
Accounts and TAR 31 December 2019 19 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 24 Jan 2017

Charitable objects

THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY NORRIE DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:- 1. PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF NORRIE DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC; 2. RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH NORRIE DISEASE.

Contact information

Address:
The Norrie Disease Foundation
PO Box 12476
COLCHESTER
CO1 9RB
Phone:
01487898323
Email:
ENQUIRIES@NORRIEDISEASE.ORG.UK
Website:

WWW.NORRIEDISEASE.ORG.UK