SUPERFICIAL SIDEROSIS - THE SILENT BLEED

Charity Number: 1169340
Charity reporting is overdue by 302 days

Charity overview

Activities - how the charity spends its money

We offer guidance and support to those with Superficial Siderosis, their families, friends, carers and physicians. The charity was developed to aid those with this rare neurological condition to share, network and find further information. We raise funds for research into finding a cure for the disease.

Income and expenditure

Data for financial year ending 30 September 2022

Total income: £1,858
Total expenditure: £342

People

3 Trustee(s)

5 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

This charity raises funds from the public but does not work with professional fundraisers or commercial participators.

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • United States

Governance

Registration history:
  • 26 September 2016: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
JASON KELVIN ROBERTS Chair 15 August 2014
None on record
Sydney-James Fearn-Roberts Trustee 04 March 2019
None on record
AMANDA FEARN BA HONS Trustee 15 August 2014
None on record

Financial history

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Financial period end date

Income / Expenditure 30/09/2018 30/09/2019 30/09/2020 30/09/2021 30/09/2022
Total gross income £2.67k £3.26k £1.01k £5.10k £1.86k
Total expenditure £716 £2.07k £3.07k £4.27k £342
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 September 2023 Overdue Charity reporting is overdue by 302 days
Accounts and TAR 30 September 2023 Overdue Charity reporting is overdue by 302 days
Annual return 30 September 2022 22 September 2023 54 days late
Accounts and TAR 30 September 2022 22 September 2023 54 days late Download Open in new window
Annual return 30 September 2021 03 August 2022 4 days late
Accounts and TAR 30 September 2021 03 August 2022 4 days late Download Open in new window
Annual return 30 September 2020 15 June 2021 On Time
Accounts and TAR 30 September 2020 03 August 2022 369 days late Download Open in new window
Annual return 30 September 2019 24 August 2020 25 days late
Accounts and TAR 30 September 2019 24 August 2020 25 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 26 Sep 2016

Charitable objects

(A) FOR THE PUBLIC BENEFIT, TO ADVANCE EDUCATION OF EVERYONE ABOUT THE RARE DISEASE SUPERFICIAL SIDEROSIS - SPECIFICALLY SUFFERERS OF THE DISEASE, THEIR CARERS AND THEIR PHYSICIANS. TO ALSO HELP FUND ONGOING, ESTABLISHED AND NEW MEDICAL AND SCIENTIFIC RESEARCH INTO SUPERFICIAL SIDEROSIS, BY PROVIDING GRANTS AND ESTABLISHING NETWORKS OF PROFESSIONALS AND PATIENTS THROUGH OUR WEBSITE AND SOCIAL MEDIA. (B) TO ADVANCE HEALTH AND SAVE LIVES THROUGH: INFORMATION DISSEMINATION TO SUPERFICIAL SIDEROSIS SUFFERERS, CARERS AND THEIR PHYSICIANS; IN ORDER TO SUPPORT SUFFERERS IN GETTING ACCESS TO THE MEDICAL CARE AND TREATMENTS THEY NEED. WE WILL DO THIS THROUGH OUR WEBSITE, PRINTED LEAFLETS AND OTHER MATERIAL AND BY ORGANISING SOCIAL AND VIRTUAL EVENTS USING SOCIAL MEDIA. (C) THE RELIEF OF THOSE IN NEED BY REASON OF DISABILITY BY PROVIDING ADVICE AND EMOTIONAL SUPPORT TO SUFFERERS, THEIR CARERS AND PHYSICIANS. WE WILL DO THIS THROUGH OUR WEBSITE, PRINTED LEAFLETS AND OTHER MATERIAL AND BY ORGANISING SOCIAL AND VIRTUAL EVENTS USING SOCIAL MEDIA. (D) THE CHARITY IS FOR THE BENEFIT OF SUPERFICIAL SIDEROSIS SUFFERERS, THEIR CARERS AND THEIR PHYSICIANS WORLDWIDE, NOT JUST IN THE UK.

Contact information

Address:
1 Laburnum Close
ALDERSHOT
Hampshire
GU11 3DX
Phone:
07870625357
Email:
silentbleed101@gmail.com
Website:

www.thesilentbleed.co.uk Open in new window