Hughes APS Trust

Charity number: 1172388
Charity reporting is up to date (74 days late)

Charity overview

Activities - how the charity spends its money

GHIC is the only UK and International Hughes (Antiphospholipid) Syndrome Charity that is dedicated to educating patients, doctors and all those affected by Hughes Syndrome, raising awareness for much earlier diagnosis and contributing to research to find better treatment options.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £3,767
Total expenditure: £4,697

People

7 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

One or more of the employees were formerly trustees

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • France
  • Ireland
  • Italy
  • Northern Ireland
  • Portugal
  • Scotland
  • Spain
  • United States

Governance

Registration history:
  • 03 April 2017: CIO registration
Organisation type:
CIO
Other names:
  • GHIC (Working name)
  • THE GRAHAM HUGHES INTERNATIONAL CHARITY FOR HUGHES (ANTIPHOSPHOLIPID) SYNDROME (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Paying staff
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
DR Ali Sadiq Mohammad Jawad Dr Trustee 22 January 2018
None on record
Dr Graham Robert Hughes Dr Trustee 18 January 2018
None on record
Dr Arvind Kaul Trustee 10 October 2017
None on record
MADELEINE MALIK Trustee 06 October 2017
None on record
Margaret Thompson-McCormick Trustee 14 August 2017
None on record
SANDRA HAMPSON Trustee 04 April 2017
None on record
Dr Laura Bertolaccini Trustee 03 April 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £8.97k £17.51k £6.88k £21.95k £3.77k
Total expenditure £22.67k £5.76k £9.30k £8.95k £4.70k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 31 January 2025 On Time
Accounts and TAR 31 March 2024 15 April 2025 74 days late Download Open in new window
Annual return 31 March 2023 13 February 2024 13 days late
Accounts and TAR 31 March 2023 21 May 2024 111 days late Download Open in new window
Annual return 31 March 2022 01 March 2023 29 days late
Accounts and TAR 31 March 2022 15 February 2023 15 days late Download Open in new window
Annual return 31 March 2021 01 February 2022 1 days late
Accounts and TAR 31 March 2021 01 February 2022 1 days late Download Open in new window
Annual return 31 March 2020 25 March 2021 53 days late
Accounts and TAR 31 March 2020 25 March 2021 53 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 03 Apr 2017 as amended on 13 Feb 2024

Charitable objects

(1) THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH OF PEOPLE WITH HUGHES (ANTIPHOSPHOLIPID) SYNDROME (“HUGHES SYNDROME”) IN PARTICULAR THOUGH THE PROVISION OF INFORMATION, SUPPORT AND PRACTICAL ADVICE TO PATIENTS THEIR FAMILIES AND CARERS; (2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO HUGHES SYNDROME; AND (3) TO PROMOTE AND CARRY OUT FOR THE PUBLIC BENEFIT RESEARCH IN HUGHES SYNDROME AND TO PUBLISH OR OTHERWISE DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH.

Contact information

Address:
The Shard
TOG 24/25
32 London Bridge Street
London
SE1 9SG
Phone:
02072342322
Email:
HELLO@GHICWORLD.ORG
Website:

HTTPS://GHICWORLD.ORG