UK INFANTILE SPASMS TRUST

Charity number: 1172167
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Raising money to help families who have children who suffer from spasms with support and care.

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £87,099
Total expenditure: £40,354

People

10 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 21 March 2017: CIO registration
  • 04 March 2025: Funds received from 1150566 THE PHILLIPS 2012 CHARITABLE TRUST
Organisation type:
CIO
Other names:
  • UKIST - UK INFANTILE SPASMS TRUST (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

10 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
JENNIFER RAWLING Chair 21 March 2017
None on record
Susan Blackburn Trustee 24 February 2024
None on record
Kelly Louise Skinner Trustee 24 February 2024
None on record
Chloe Amber Louise Cox Trustee 24 February 2024
None on record
Louise Elizabeth Derbyshire Trustee 04 March 2023
None on record
Amy Louise Dowding Trustee 26 March 2022
None on record
Alice Goldhill Trustee 02 May 2020
None on record
Louisa Coyle Trustee 02 May 2020
None on record
Michelle Kim Scoffield Trustee 14 April 2019
None on record
SAMIA SANDERS Trustee 21 March 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2021 05/04/2022 05/04/2023 05/04/2024 31/03/2025
Total gross income £40.08k £45.80k £23.82k £44.25k £87.10k
Total expenditure £15.95k £16.83k £16.02k £23.83k £40.35k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2025 02 September 2025 On time
Accounts and TAR 31 March 2025 02 September 2025 On time Download Open in new window
Annual return 05 April 2024 24 January 2025 On time
Accounts and TAR 05 April 2024 24 January 2025 On time Download Open in new window
Annual return 05 April 2023 21 December 2023 On time
Accounts and TAR 05 April 2023 21 December 2023 On time Download Open in new window
Annual return 05 April 2022 02 November 2022 On time
Accounts and TAR 05 April 2022 02 November 2022 On time Download Open in new window
Annual return 05 April 2021 22 November 2021 On time
Accounts and TAR 05 April 2021 22 November 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 21 Mar 2017

Charitable objects

THE RELIEF OF THE NEEDS OF THOSE SUFFERING FROM INFANTILE SPASMS OR WEST SYNDROME BY (BUT NOT EXCLUSIVELY): (A) THE PROVISION OF INFORMATION, ADVICE, OTHER ASSISTANCE AND SUPPORT TO CHILDREN, PARENTS, FAMILIES AND CARERS OF THOSE AFFECTED BY INFANTILE SPASMS OR WEST SYNDROME; (B) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF INFANTILE SPASMS OR WEST SYNDROME AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH; (C) RAISING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS (D) PROVIDING INFORMATION AND TRAINING TO THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS.

Contact information

Address:
28 OVERNHILL ROAD
BRISTOL
BS16 5DN
Phone:
0117 956 8868
Email:
UKINFANTILESPASMSTRUST@GMAIL.COM
Website:

https://ukinfantilespasmstrust.org Open in new window